MPNforum Magazine

Catalog of MPNforum Articles 

This is a work in progress.  While nearly complete to the best of our knowledge, our early days were chaotic as we wrestled pages from test sites to the MPNforum Magazine pages trying to figure things out. It’s likely an article or two is missing from this Table, but it’s a beginning.  While we are still missing some MPNforum  articles and Columns,  you can still find  all your favorites by using the Search box on most Forum pages or try Google,  And you can always just scroll down the list.

  Another, quicker way is to press Control F, to access the Search Box, and type in the subject or person you’re looking for.  All else fails, drop us a line and we’ll find it for you.

The objective, when complete,  is to publish a full index by subject and author. (Or, as  Robert Browning wrote, “A man’s grasp should exceed his reach, or what’s a Heaven for?”)

The photographs are thumbnails which will expand to full size when clicked.  Each article title is hyperlinked to the original full article itself.

Completion of this first part of the Table is a bit of a landmark and a necessity for our many new readers.  We had 1064 visitors to the pages of our first issue  May 15, 2011 and 11, 325 May, 2012. By March 2015 that number had swelled to 400,000  and then well  past 800,000 so there’s a lot of catching up to do. Until now, there was no easy way for our many new readers to know about prior articles or search by subject or authors.

Any corrections or comments can be made in the Comments box at the end of the Table or sent to ourMPNforum@gmail.com…  and would be greatly appreciated. Thanks for all the good stuff,         MPNforum 

Bare, naked DNA / by ZhenBeyond research, 23andMe offers participants in its MPN cohort both an ancestor report and a report outlining genetic predisposition for certain diseases.  Zhen opens the covers and discovers he’s the product of a mixed marriage…and had better look into his thyroid issues.

Jacob Corn no one’s hiding their stuff: https://mpnforum.com/jacob-corn-no-ones-hiding-their-stuff/

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	An End to Hostilities / by Zhenya Senyak	A Valentine’s Day appeal for MPN patient support lists To work together for the common interests of patients. A footnote to the five-part MPN On-line E-mail Patient Support List series.
	A Primer on Blood Clots and Thrombosis  /  by Marina Sampanes Peed	A primer on blood clots and thrombosis taking off from Dr, Babette Wechsler’s CR&T presentation and extending to the pathophysiology of clots.
	23andMe – the MPN DNA offer	23andMe is building an on-line database of MPN patients’ DNA to stimulate lower cost, faster response research. In order to encourage MPN patients to participate, the company is offering a free DNA profile and on-going services.  Why?
	A love story/ by Bonnie Evans	Bonnie and Joe have been part of the MPN support list and Facebook community for years as we’ve followed Bonnie’s blog and her relentless pursuit of appropriate medical services for Joe.  Before this public struggle to overcome Joe’s MPN there’s a much earlier, private story.
	A myeloproliferative neoplasm….why me?	Why me? Is it somthing in my genes? Something I ate. This reprint from an MPN Research Foundation article has some answers.
	Ahhh…The Single Life/ by Ann Haehn	Story of Genny, a single mom, and her struggle with primary myelofibrosis, the need for a support village…and Smurfs.
	Alan Caruthers at MDCC for SCT	Bonnie Evans’ report on Alan who previously went through a splenectomy as his MF worsened. He is admitted to the MD Anderson Cancer Center for a stem cell tranplant.
	Animal House/  by Mary Hopper	Mary, diagnosed with ET, reiies on her menagerie — three Pomeranians, one lab mix, one husky/basset mix, one pit bull and two cats — to get her through the day with a smile.
	Ask the doctors	In the first joint media interview after Ruxolitinib released its strongly positive results, Drs. Srdan Verstovsek and Ruben Mesa answer the key questions and present their posters.
	Bente’s Story  Bente Evadatter	MPN treatment in Norway.
Dr. Susie Jun, PhD.	ASH 2014: Too late for Momelotinib?
Dr. William Dameshek credit: http://hdl.handle.net/10427/1164	Between two worlds	How many kinds of myelofibrosis are there anyhow?
	Behind the Lab Door/ Zhen	What happens after the MPN Research Foundation awards its grants. Part One of a series, a look at the work of Dr. Ben Ebert and Dr.Ross Levine
r	Blood and Bone – the factory floor/ By Zhen	There may be a co-conspirator in our MPNs that has largely escaped identification. The origin of our MPNs is in hematopoietic stem cells that share a micro-environment with skeletal stem cells – a niche — that influences both bone and blood. They are co-dependent
	Call for caregivers/ by Barbara Beckman	An appeal for caregivers to share their experiences by telling their stories
	Bone Marrow Transplant/ by Chris Harper	Chris takes us from his diagnosis through BMT at University Hospital in London and his recovery.
	City of Hope/ by Marty Prager	Marty describes his Stem Cell Transplant, his experience from the beginning when he first considered  the procedure right through each step.
	Clinical Trial/ by Harvey Gould	With a little kvetching and a lot of love, Harvey tells the story of what it’s really like to be on a clinical trial at the Stanford Medical Center.  The Ritz, it’s not.
	Concept grants target fibrosis	MPNRF and the Leukemia  & Lymphoma Society team up to fund innovative research to reverse fibrosis in MF.
	Crisis in MPN Care –and what You can do about it	97% of MPN patients worldwide do not directly benefit from the Internet Support sites or the patient conferences sponsored by foundations and institutions.  How do we reach them?
	Claire Harrison — Rethinking ET and PV/  by Zhen	Risk stratification and therapeutic options are on the table in this look at Dr. Claire Harrison’s current work:  “The continuum model,” she says, “is about getting people to think outside a rigid box….”
	Doc, how long do I have?/ by MPNforum Readers	Elizabeth Goldstein, Kathy Van Meter, Joe Evans and Beatrice Larroque consider how long they have to live with their MPN and share survival strategies
	Drill/ by Barbara Beckman	Description of a new product, a surgical drill, to improve the bone marrow biopsy experience.
	Drop the D…or else	Animals and rainbows are brought to witness the necessity to finally abandon MPD and adopt MPN.
	Easier living on my own/  by Manuela Manuel	Part of the Living Single series, Manuela takes a different view of living the single life with an MPN and complications.
	Eleven stories…an introduction	In this special story issue, 11 MPN patients and caregivers share their views on iving single, wondering how much longer they can expect to live and telling their own stories. This is the introduction with links to all stories..
	Facebook and the Double MPN Life	Sometimes it look like a party in the House of MPN, but what’s really going on?.
	Fallout from 23andMe…on to Patient Support Lists	After a bruising response, pro and con, to the 23andMe initiative, we move on to the calmer waters of the MPN/MPD Patient Support Lists…life jacket in place..
	Five years and I’m still here/ by Kathy Van Meter	When the positive news, isn’t. Discovering she suffered from a blood cancer, Kathy gave herself five years..
	G.G.: A trillion healing kisses/  by Ann Haehn	G.G. shares her life, hopes, art and family in this far-ranging portrait.
	Genetics — Crash MPN course/ by Zhen	How can four little DNA letters turn into protein generating three letter codons and six billion base pairs locked in the dark night of a cell nucleus? (This article includes links to the three part Genetics for MPNs on-line class offered simultaneously on MPDchat and MPN-NET in the Spring of 2010, a hodge-podge of lecture,  MIT videos, cartoon simulations, and short-answer exams…no credit given.)
	Genny — A Mother’s Tale/ by Ann Haehn	“So my mind switches direction, and I begin to think that perhaps I should first relate what it is like to be the mother of a child who has an incurable blood cancer.  Why, dear reader, it takes your very breath away.  That is what it is like.”
	Genny, the transplant begins/ by Ann Haehn	Ann continues the story of Genny’s struggle against MF with her vigil by her daughter’s side as they wait for news of the success of the stem cell engraftment. In photos and text she traces the path of Genny’s recovery process in powerful, graphic terms.
	Get involved in 2012 — Join your MPN friends at the Forum	Three ways to join the MPNforum community
	Getting to a joyful place/ by Sevy Goulielmos	Strategies to break out of the isolation of dealing with an MPN as a single woman
	Go, Sevy, Go...	This is Sevy’s account of a bike ride to defeat cancer, riding in a fund raising peloton along the historic King’s Road (Chemin du Roy), the oldest roadway in Canada, at 23 km/hr.
	Got a good Doc…Share the news!	This is the place to enter your good doctor’s name in the pantheon of MPN heroes…and maybe help an MPN brother or sister connect with much needed help.
	Harriet/ by Zhen	This profile of Dr. Harriet Gilbert is Part One of our On-line MPN Patient Support List survey. She is the first and perhaps the most determined advocate for MPN patient education, patient outreach, and physician-MPN patient interaction.  Beyond her extensive MPN clinical practice, she started the on-line e-mail support list phenomenon and sponsored the first MPN patient centered conferences.
	Harriet Gilbert’s waiting room	A short note on spontaneous sharing among MPN patients.
	How I got my ET diagnosis/ by Ellen Jacquart	It took a high potassium reading to alert Ellen’s doctor that something else was going on.
	I’ll take what I have/ by Anthony Tiano	A public television executive travels the hard road from myelofibrosis to heart value issues and kidney failure.  With his counts now stable, his splenomegaly poses a massive obstacle to maintaining his quality of life…and he’s evaluating his options.
	Interview Paul Friedman – CEO, Incyte	The CEO of Incyte sits down for a full discussion with MPN patients about the corporation’s plans to bring Ruxolitinib to market…He reviews the strategy, the history, the science and explains why Incyte is wiillng to make such a massive investment for such a relatively small market.
	Introducing the 2012 Editorial Board	This is the team that will help bring us through our second year.
	Is it time to rethink Jakafi for MF?/ by Zhen	Dr. Ayalew Tefferi seems to think so. A discussion of his full bore assault on Jakafi, complete text of his video and links to his NEJM article. The Phase III clinical trial data that led to FDA approval is not considered. This was first published as a news brief, “Tefferi drops the other shoe,” below.
	It’s a living/ by Elizabeth Goldstein	A very short story on learning to live with symptoms of an MPN and side effects of HU.
	Is it time to rethink Jakafi? by Zhen	The core issues in Tefferi vs Jakafi with multiple exhibits, posts and links. The full airing of concerns and responses from Comfort I investigators and charts presented to the FDA in support of the positive risk/’benefit ratio of the drug for certain cases of MF.
	Joyce/ by Zhen	Part III, of the five part  On-line MPN Patient Support List Series traces Joyce’s career from her days as a young patent lawyer on through her life’s work as the most indomitable and effective MPN patient advocate despite her own advancing, deadly MPN.
	Lend a hand…if you can	Keep it simple.  Keep it small.  Make it work.  The small donation program
	Looking back, looking ahead	Report card, review, and openings for participation
	Manuela/ by Manuela Manuel	Femme se fatigue. A long journey to an MPN conference in London, in pain.
	MPDchat: The Last List/ by Zhen	Part V, the conclusion of the On-line MPN Patient Support LIst series. Focus is the newest e-mail List, MPDchat, started in 2009 by Judy Cuckston, with a different approach to patient support.
	MPN Drug Wars/ by Jeremy B. Smith	Jeremy remembers the early days of the Patient Lists (1994), when the first split-offs occurred and the debate raged over the use of hydroxyurea vs. interferon for treatment of polycythemia vera.
	My Dinner with MPN-NET/ by Zhen	Part IV of the five-part On-line MPN Patient Support List series, in praise (mostly) of MPN-NET, the commitment, dedication, and perseverance of its List Owners’despite their own MPN disabilities.
	My life of crime/ by Mary Ann Farley	What happens when Lady Gaga illustrates the great distance between hope, talent, and ambition and the realities of the MPN life and the twists of fate.
	My Online Mother/ by Jeremy B. Smith	Jeremy’s comments on the passing of Charlotte and the power of the Internet to bring us together and form powerful bonds.
	My Robert/ by Zhen	Part II of the five part  On-line MPN Patient Support List series.  Profile of Robert Tollen, owner of MPD-Support, pioneer of the patient-run MPN Internet support e-mail service.
	News Briefs…February	Harvey’s book, A Fierce Local… the Merck $950 million fine…The Foundation’s list of patient assistance sources combine to launch this news feature
	NYC goes MPD for a day	New York MPN patient and doctor conference sponsored by CR&T and the MPN Research Foundation draws more than 200 to hear updates on current findings in genetic research and treatment options for the MPNs from a renowned international roster of scientists, clinical investigators, academics and hematologists..
	On the pathway to beat polycythemia vera/ by Zhen	One of the great mysteries about JAK2 inhibitors is they seem to work whether or not a patient has the mutation.  This was one of the findings that led Shauguang Li to zero in on genes downstream of the JAK2 signalling that may be decisive in developing PV.  Part of the “Behind the Lab Door,” series.
	On trial for her life/ by Barbara Beckman	Long before there was Jakafi, there was ruxolitinib. And long before the Phase III clinical trial that was decisive for its FDA approval, there were dosage and toxicity trials.  Barbara has been there from the beginning and tells her story.
	Panic Attack! by Moshe Leib	The unusual but effective crustacean cure for a panic attack. It works best with a wife along for the ride.
	Poetry Corner/ by Arnie McConnell	The poet laureate of MPNforum makes his debut with a paean to PV…
	Poetry Corner – April	…and follows it up with the theme song to our Singles stories, backed up by the incomparable Ella.
	Remembering Karl/by  Zhen	Karl Kevin Lachevet grabbed all our hearts as he  posted words of encouragement,  jokes, and graphic descriptions from his hospice bed. He steps out of the shadows in this memorial that gave us all our first glimpse of the man, his circumstances and his family.
	Reversing fibrosis/ by Zhen	LOX, lysysl oxidase plays an important construction role in the body It’s a potent initiator of essential activity among various cell types. But LOX enzymes running wild can be a trouble-making gang rampaging through the blood production system. This is the story of Katya Ravid’s lab and her work in reversing associated fibrosis.
	Ruxolitinib on Trial/ by Zhen	“For the first time we have a treatment (for MF),” said trial investigator Dr. Claire Harrison of Guy’s and St. Thomas, London “that meaningfully reduces spleen size and addresses the burden of disabling symptoms.”This is the extensive coverage of ruxolitinib from before its dramatic successes were reported at the ASCO meeting in Chicago through its presentation by Drs. Verstovsek and Mesa.
	Sam’s Art/ by Cyndy Morreale	Though forced by his advancing MPN disabilities to limit his movements, Sam Morreale was able to create blazing, colorful art in his modified studio.  The exhibit was curated by his wife, Cyndy.
	Sam, Remembered/ by Cyndy Morreale	After Sam’s passing, Cyndy shares the story of their extraordinary life together and presents more of Sam’s work.
	September song	An early Autumn reflection on the state of MPN support and the upcoming MPNforumissue.
	Shalom, Charlotte/ by Shelly Levin	Charlotte’s life is celebrated by her husband in a pictorial review of their days together.
	Solo–Ah the single life/ by Ann Haehn	As Genny recovers from her SCT, her mother reflects on the difficulty of being a single mother raising small children while suffering from a deadly, debilitating MPN.  She needed a village.
	Tefferi Drops the Other Shoe/ by Zhen	Amid the euphoria over Jakafi’s approval y the FDA, Dr.Ayalew Tefferi launched a blistering counter-attack, first in the NEJM (see NYC goes MPD) and now in a YouTube video presenting his study of 1000 Mayo Clinic patients.
	Polly and Milo on Planet MPN	Two cartoons to accompany the MPN Patient Support List stories
	The binder goes everywhere/ by Emily Doering	A run in with Anagrelide was one of the events that convinced Emily she had to become an active patient and couldn’t offload that responsibility to her doctors.  Her magic weapon:  the binder!
	The Caregiver/ by Barbara Kurtz	What happens when an MPN patient is forced to become the Caregiver when her husband suffers a stroke?
	The forgotten MPN Patient — Proliferative conferences, an editorial	MPN Conferences can only go so far in reaching MPN patients.
	The List/ Ellen Jacquart, Editor	The List of local hematologists recommended by MPN patients, publicly available.
	The Marijuana Papers/ by David Ensey	When prescriptions don’t work and pot does what’s an MPN patient to do?
	The numbers game/ by Beatice Larroque	How long am I going to live. When the computer says 3 to 5 years and you have young kids, that answer isn’t good enough.
	Web Publishing Workshops/Internships	Two part-time jobs, one publishing workshop offered to volunteers.
	West Palm Beach MPN Conference…in deep winter!!!!	Another Eastern MPN Conference…but this one has another attraction.
	What’s with MPN-NET?/ by Zhen	Accused of being on the take…what’s the only possible response?
	Whatever happens, I’m ready./ by Joe Evans	Joe Evans has been through it all  We’ve heard some of it from his wife, Bonnie, but here Joe tells us lots more…and how he feels about what’s coming.
	When DNA results get personal/ by Ashley Gould	Ashley Gould, who presented the 23andMe MPN research initiative last year, reports on a SNP finding associating JAK2 gene with MPNs, a result uncovered with powerful implications for the kind of research possible once the full MPN patient cohort is completed. What’s her personal risk?
	Zhen on Fiddling	On a little known association between fiddling and MPN research.
	Enjoying every morning, Beatrice Larroque
	Rethinking bone marrow biopsies, Zhenya Senyak
	The newest MPN —	controversy and confusion over preMF
	The list of hematologists, Ellen Jacquart, Ed
	Out of the dark,  Janice Creed
	Rolling Out the Big Guns — Zhen
	MPNclinic INDEX all questions
Tony (l.) with actor, director Peter Coyote	Tony’s Last Documentary
	Ian Sweet — Human face of AML
	Nathalie’s Discovery–Nathalie Cook
	Stem Cell Diary – Pat Hensley
	News Briefs…Junk DNA….Organics
	Recipes for Good Eating
	Dr. Arch on Bedside Nursing
On trial with CYT387 (Harvey GOuld)	Michael Goldstein on Empathy	Harvey Gould on his “first.”
	Harvey Gould’s “First”
	October, 2011 Cover	MPN Heroes
	On the pathay to beat PV	Dr. Shaoguang Li and ALOX
COLUMNS – INCOMPLETE	IN PROCESS	r IN PROCESS
	A path out of the forest	Harvey Gould: the Long and Winding Road
	Arch’s Corner/ by Dr. Arch Mcc	rArch gets rid f toxic baggage.https://mpnforum.com/archs-corner-feb/
	Arch’s Corner	An advancing tide of MPN understanding, some history, some conjecture https://mpnforum.com/5087-2/
	Arch’s Corner	rMusings of an elderly 20thCentury doctor – The way it was.https://mpnforum.com/archs-corner-january/
	Arch’s Corner	Stasis dermatitis, tarsal tunnel syndrome. And coke bottle leg. O my.https://mpnforum.com/archs-corner-may
	Arch’s Corner	On ascites and edema
	Arch’s Corner	On anti-oxidants
	The Long and Winding Road /by Harvey Gould	Karen becomes the driver, Harveyresigns from the partnership https://mpnforum.com/long-and-winding-april
	The Long and Winding	Living in two worlds at the same time.
	The Long and Winding	Cockiness and MF
	The Long and Winding	Harvey debates quitting the practice
	The Long and Winding	The first crossroad
		Cockiness and MF
	The Empowered Patient/ by Dr. Michael Goldstein	Michael makes New Year’s resolutions
	Empowered Patient	Top ten ways to be more empowered
	Empowered Patient	How to make informed decisions /
	Empowered Patient	On hearing
	Empowered Patient	Personal Health Records
	MPNLife/by Jeremy Smith	The power of juice and nutrients. https://mpnforum.com/jeremy-march-feb-5
	MPNLife/Jeremy	rVitamins and supplements.. in search of magic in pills.https://mpnforum.com/mpn-life-vitamins-and-supplements/
	MPNLife/Jeremy	Fatigue.. https://mpnforum.com/mpn-life-fatigue/Fatigue and how to deal with it, crawl-walk-run
	Mind-Body-Spirit/ by Patricia Wagner	A catastrophic stroke and near-death experience was the result of an uncontrolled MPN.  Health miraculously regained upon using about the mind, body and spirit connection in conjunction with standard medical care.
	Mind-Body-Spirit/by Patricia Wagner	The new science of epigenetics points the way to transforming the body by changing the mind and spirit.
	Mind-Body-Spirit/	The field of the subconscious mind includes your body itself.  Therefore, transform your mind and your body will follow.   https://mpnforum.com/body-mind-spirit-rec-sept/
	Mind-Body-Spirit/	On affirmations
r	Mind-Body-Spirit/	Gain pain relief, a peaceful heart, and glimpses into your own subconscious programming through Mindfulness Meditation.  Step-by-step instruction, including an online workshop by Dr. Jon Kabat-Zinn.  https://mpnforum.com/mind-body-spirit-rec-dec/
	Mind-Body-Spirit/by Patricia Wagner	Awareness of the unity of life and many personal blessings through prayer,.  The author’s own belief that prayers for healing are answered, even if not yet visible    https://mpnforum.com/body-mind-spirit-january/
r	Mind-Body-Spirit/	There are complementary practices, leading to health, for even YOU.  A review of the options and look ahead. . https://mpnforum.com/mind-body-spirit-oct-rec/.
	Mind-Body-Spirit/	The art of Courageous Visualization for health:  Read an example of an effective visualization A video with expert Shaki Gawain. .
Recovered and out of Sequence	Recovered and out of Sequence	Recovered and out of Sequence
	Follow the Yellow Brick Road/ by Zhen	The JAK-STAT pathway, how the process works to regulate — or dysregulate — blood production.
	Enjoying every morning, Beatrice Larroque
	Rethinking bone marrow biopsies, Zhenya Senyak
	PrePMF,  The newest MPN — controversy and confusion, Zhen
	Poetry Corner:  Out of the dark,  Janice Creed
	Powerhouse Bay Area Patient Conference
	23andMe and the DNA offer
	On death and dying	The gift of myelofibrosis
	MPNclinic	September, 2012
	MPNclinic	October, 2012
	MPNclinic	November,2012
	December 2012 Cover	Special Report, ASH 2012
	Nov-Dec 2012 Cover	The Fatigue Project
	Getting to ASH	Intro to Special Report
	JAK -a proliferation of uninhibited promise	A rundown on JAK inhibitors
Dr. Richard Silver Weill-Cornell	Silver on Interferon	Interview, video Dr. Richard Silver
	On trial with CYT387	Harvey Gould, 1st hand report
	Empowered patient sets goals	Michael’s year-end bid to end smoking
	January 2013 Cover	The Missing Patient
JAK-Stat Pathway, Source Nature Reviews, Immunology	The Secrets of JAK2 Inhibition	War Against the Clones
	The Jakafi Report	A survey of 21 MPN patients using Jakafi in its first year.
	The Missing Patient	Why our fatigue isn’t treated
	MPNclinic – January 15
	Michael Goldstein on SCT
	MPNLife- Exercising with MF
	Beatrice Larroque   Living with a chronic disease	A round by round account
	Andrew Schorr – A lucky duck with MF
	Harvey Gould – A little kvetch, a little kvell
	Newsbriefs – January 15 2013
	January, 2013:  Cover
	MPNclinic – February 15
	The Fatigue Project – On-line survey
	Seven years of silence
	What is the Fatigue Project
	The Facebook SCT Meeting
	Too old for SCT
	A mother’s tale continues
	Zhen looks at SCT biological warfare
	Report from Cardiff
	Joyce Niblack/Mayo Conference
	Tribute to Eric James
	A valentine from Harvey
	All aboard with Mary Cotter
	The February 15 Cover
	The Last, old MPNforum
	MPNclinic, March 15, 2013
	The MRF Project, Survey update
	All three parts: I: Alick Isaacs, Discovering Interferon; II. Richard Silver, bringing interferon to MPNs; III. Interferon and the treatment of PV, ET and MF  The Interferon Papers
	A love letter to Miriam – Arnie McConnell
	SCT Family Event – MPD Voice
	June, 2012 Cover
	March 15, 2013 cover
	April 15,2013 cover
	Silencing genes- Panobinostat
	Reversing fibrosis – Promedior
	The Patient’s Playbool
	Fatigue Project Report — Interventions by Dr. Robyn Emmanuel and Mary Cotter
	Seven MPN Heresies
	Home Page, January 2012	Triumph of the MPN Spirit
	Home Page, July 2012
	Summer Supplement, 2012
	November, 2013
	December-January (2013-14)
	The first six MPNcliics with INDEXThe Combined MPNclinics (first six)	Six Clinics – The Index Project, PLUS FIRST DRAFT INDEX
	January 15, 2014 Tribute Issue
	The Long and Winding Road/Cliff
	Long and Winding Road/Don’t pass GO
	March issue, 2014
	Sanofi — Special Patient Safety Report	This is the comprehensive report on Sanofi’s Fedratinib (SAR302503) clinical trial blow-up  that launched the Zebra Coalition and the Patient Advocate Petition   Published January 26, 2014
	Behind the Collapse of Sanofi’s Fedratinib/TSR	The summary of investigation, call to action, Exhibits, published December 11, 2013
	April, 2014
	May, 2014
	Summer, 2014
	Autumn, 2014
	November 2014
	January, 2015
	February, 2015
	Spring, 2015
	Summer. 2015
	https://mpnforum.com/four-months-of-crispr/	Now CRISPR targets MPN genes (Four months of CRISPR)
	https://mpnforum.com/george-church/	George Church on synthetic biology and MPNS. (
	https://mpnforum.com/jacob-corn-no-ones-hiding-their-stuff/	Jacob Corn no one’s hiding their stuff:
	https://mpnforum.com/the-two-faces-of-rachel-haurwitz/	The Two Faces of Rachel Haurwitz
	https://mpnforum.com/news-crispr-researchers-target-incurable-blood-cancer/ https://mpnforum.com/hope-and-challenge-in-mpn-crispr/	News: CRISPR comes to MPNs CRISPR.. What are we waiting for? (The CREATE Seminar)
	https://mpnforum.com/august-2015 August 2015	Pajama DIaries…CHZ868…CREATE Seminar, the long and winding road out of MPNs…Ellen and the List.
	Autumn, 2015	Farewell to Joe, Ross and CHZ868 interview. All about JAK,  A Song for Harvey  TSR — Inteferon safe for JAK neg patients?…Sunshine At and Dollars for Docs…
	October, 2015	Cold Spring Harbor Meeting, gene edited SCT,  Feng Zhang and Cpf1, Letter from Jerry Spivak on Dollars for Docs,  Eugenics, Jacob Corn joins board, CREATE meeting
	HikeMF	Points of Light… Patients, caregivers and friends getting together to raise money for research into myelofibrosis.
	Mid-November (2015)
	December, 2015
	January, 2016
	Spring, 2016
	Summer, 2016
	Fall, 2016
	Cachexia
	Winter, 2016 https://mpnforum.com/winter-ash-2016/
	Spring, 2017
	Summer, 2017
	Fall, 2017
	https://mpnforum.com/december-2017-the-ash-issue/ Winter, 2017
	Special Report –SSTT and MPN Patient Care Survey with Stem Cell Transplant Taskforce
	Jakafi warning signs
	December, 2018 – The Big Issue
	Summer, 2019
	July-August, 2019
	January, 2020
	Spring, 2020
	August 2020
	October, 2020
	Coming Attractions, Summer 21Summertime 2021: Coming Attractions
	COVID Special Report May 21
	TSR — My old flame September, 2021
	TSR- Reflections October, 2021
	TSR – Winter 2021-2022`
	TSR-The Burning Planet
https://mpnforum.com/autumn-2022/ ‎	Autumn 2022