Science & Medicine

Call for caregivers

Caregiving Stories Needed

For a coming MPNforum series we would like to hear from people who are the caregivers for their loved ones. Some have posted about the illness of the one they care for, but we want to know what it is like to do the caregiving. Caring for someone with a myeloproliferative disease can be different. If you would like to remain anonymous, that is okay. Please send your comments to so can plan future articles based on actual responses and stories.

The following questions might help you in your response, but don’t feel that you are bound by them:

  1. What is the hardest part?
  1. How do you handle time and scheduling pressures?
  1. Do you feel you were adequately prepared in the beginning to take on this job?
  1. Did you have to go through a learning curve about the illness?
  1. Where or whom do you most often turn to for support?
  1. Does faith help?
  1. How is your health?
  1. How do you juggle your own lives and dreams with responsibility to another?
  1. Do you miss the person he/she used to be?
  1. How would you describe your overall caregiving experience?

Thank you so much. Your answers may be what will help another caregiver.

Barbara Beckman

A hero is an ordinary individual who finds strength to persevere and endure in spite of overwhelming obstacles. Christopher Reeve

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