Can we make a difference?
Our MPN world has changed radically in the past two years… In kicking off the 2013 Small Donation fund-raising program, Zhen reviews the biggest change of all and its impact on our odds of success in our battle with MPNs…. There’s a look at some old friends… a preview of the new MPNforum…and a chance for you to register your opinion (It’s all here.)
In this issue…
The MPNclinic: Questions and answers on..Transfusion dependence…Anemia… Headache and ET ,,,, Erythromelalgia and HU… Pegasys with heart, thyroid issues… Exercise and RBC destruction… (Read all answers here…)
In under three weeks, 889 of us completed the MPN-Related Fatigue survey. Update on the effort to beat fatigue as Dr.Emanuel joins team and focus shifts to the Mayo Clinic.
The Fatigue Project is open for enrollment, Mary Cotter coordinating (Story, survey results, click here)
Part One — Discovering Interferon
Part Two — From Isaacs to Silver, Bringing interferon to MPNs
Part Three – Interferon and the treatment of PV, ET and MF
In the MPN World, these are historic times
A love letter to Miriam, by Arnie McConnell…
A stem cell transplant family event in London…
THE LIST: 100 patient-recommended hematologists…
The Catalog of Articles…
Tell your story, express yourself, share your experience in your MPN magazine. You can add your comments to MPNforum articles, write your own story or open a discussion with your…Letter to the Editor
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