We knew this day was coming. It just arrived so fast, after so much ferocious activity over the past dozen years….
We are planning to suspend publication of MPNforum Magazine in coming weeks.
I am a little sad but deeply grateful for the honor and real privilege of participating with so many friends and like minded folks in negotiating this perilous twisted MPN journey over the past dozen years.
Now it’s time to move on.
What to do with the deep collection of published articles, columns, personal stories, scientific breakthroughs, and medical advice available in the MPNforum catalog? This is the invaluable combined work of hundreds of patients caregivers, physicians and scientists.
There are a couple of choices we have and they each depend on you.
(1) Over the next few weeks, you can go to the MPNforum archives and copy those articles you want to keep.
(2) Rather than ultimately pull the plug and let it all this history, research, and personal comments from patient, caregiver and friends of MPNForum drift into oblivion, we can preserve the voices of Dr. Arch, Harvey Gould, Drs. Richard Silver, Ruben Mesa, Serge Verstovsek, Claire Harrison, and hundreds of other physicians, scientists and fellow patients.. We have the option to place the every article, paper and comment in an on-line archive freely accessible to all.
(3) With adequate patient/caregiver funding we can save MPNforum for present and future generations of patients students, physicians, and caregivers by creating that secure MPNforum archive
For now current and historic issues of MPNforum will continue to be freely available on-line until prepayments for domain, siting, software and WordPress premium services expire.
Future access is up to you., If you can spare a few bucks to fund the long-term archive consider making a gift to help newly diagnosed patients looking for answers, and the thousands of patients combing the List of Patient Recommended Hematologists, and the worldwide MPN community researching gene therapy, drug pricing, alternative therapies.]
Thanks. We’ll be back with a farewell issue once the dust has cleared.
Job Opening: If a qualified patient/caregiver would like to continue to publish MPNforum with community assistance and training, please contact firstname.lastname@example.org
Currently a small handful of patients are carrying the MPNforum support burden.. Special thanks to long-term loyal supporters Helen Iden, Carlos Garces, Avraham Dworsky and Mary Cotter.
The best choice to find a previously published article is probably the Archives. You can also try Google. And the alphabetical listing of hyperlinked articles (a little incomplere but useful) You’re also welcome to get in touch with me and I’ll see if I can help.
Your small donation gift can help maintain the MPNforum archives by funding a reserve to pay for long-term siting, software, domain, and WordPress premium costs
> MPNforum, PO Box 17142, Asheville, NC 28816
Small Donations ( From $5. to a maximum of $100). Gifts to MPNforum are not tax-deductible
+++ Note: MPNforum, an independent, all-volunteer myeloproliferative neoplasm patient./caregiver advocate publication is supported entirely by community small donations.
MPNforum has no relationship with the MPN Forum Live podcast project.
© MPNforum, LLC 2023, MPNforum.com, TSR The Senyak Report and the MPNforum Quarterly Journal are licensed under a Creative Commons Attribution-NonCommercial-NoDerivs 3.0 Unported License. Reproduction is permitted provided full and clear credit is given to authors and MPNforum.
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