A picture is worth a thousand words….
And this is a picture of MRF, any way you look at it.
In less than three weeks, with the cooperation of the MPN Research Foundation, MPD Support, MPD Voice and MPNforum, 889 MPN patients completed a brief scratchpad questionnaire designed to give the Mayo Clinic team under Dr. Ruben Mesa a leg up on their creation of a formal research design to explore options to relieve MRF. Myeloproliferative Neoplasm-Related Fatigue is the single greatest complaint of patients suffering from these rare blood cancers. The attempt to determine clinically tested means to relieve this fatigue opens the possibility of a much higher quality of life for all blood cancer patients. Dr. Claire Harrison of Guy’s and St. Thomas’ NHS (UK) is a collaborating participant in the UK.
Dr. Robyn Emanuel joins the Mayo Clinic MRF research team.
Dr. Robyn Emanuel a key investigator in the Mayo Clinic – Scottsdale MPN program, has been crucial to the validation of methods employed by the Mayo Clinic to assess symptom burden among essential thrombocythemia, polycythemia vera, and myelofibrosis patients. She is Collaborator and Co-Investigator, the Myeloproliferative Neoplasm Quality of Life International Study Group (MPN-QOL ISG). Mary Cotter, a Connecticut-based Counselor, is coordinating the Fatigue Project list for MPNforum. That list is one basis for clinical trial recruitment as efforts to abate MRF increase. (To join the Fatigue Project send a blank e-mail to MRFproject@gmail.com typing Fatigue as the subject.)