In this issue…
When is the right time for an MPN stem cell transplant?
Transplant specialists join the MPN clinic roundtable discussion. (Their answers are here.)
Sanofi Fedratinib trial– What really happened?
Results of the MPNforum investigation (Behind closed doors.)
When your insurance company says NO!
A lawyer shows you how to fight back. (Step-by-step)
Harvey Gould suffers a blow-out on (the long, winding road)
The Miami Patient Meeting, a (reporter’s notebook)
Franz Kafka and the Doorkeeper (an MPN parable)
The FDA / Zebra Coalition meeting on the Patient Advocate… Stem cells and antigens…Thank you!
And if you missed the links to stories in this issue, here they are in one place:
When is the right time for a stem cell transplant?
Sanofi’s Fedratinib: the Investigative report on a trial gone bad
When insurance companies say NO!
Blow-out on the long and winding road
Franz Kafka and the Doorkeeper
You can read the current issue of the Q … right here! How I treat MPNs? …Silver, Mesa, Hasselbalch, Harrison Aspirin, Platelets and Thrombosis… by J.J. Michiels… Interferon instructions for my patients… H.C. Hasselbalch
The List — 100+ Patient-Recommended Hematologists
The First Six Combined MPNclinics with Index
Tell your story, express yourself, share your experience in your MPN magazine. You can add your comments to MPNforum articles, list your Blog, or write an article. (We’ll even help you get started.)…Letter to the Editor
© MPNforum, LLC , MPNforum.com, and the MPNforum Quarterly Journal 2014. MPNforum is licensed under a Creative Commons Attribution-NonCommercial-NoDerivs 3.0 Unported License. Unauthorized use and/or duplication of this material without express and written permission is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to MPNforum.com with appropriate and specific direction to the original content.
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