Science & Medicine

May, 2014

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In this issue…

 stem cell                                                

When is the right time for an MPN stem cell transplant?

  Transplant specialists join the MPN clinic roundtable discussion.  (Their answers are here.)


Sanofi Fedratinib trial– What really happened? 

  Results of the MPNforum investigation (Behind closed doors.)


When your insurance company says NO! Samantha

  A lawyer shows you how to fight back. (Step-by-step)



Harvey Gould suffers a blow-out on (the long, winding road)

The Miami Patient Meeting, a (reporter’s notebook)

 Franz Kafka and the Doorkeeper (an MPN parable)


dots sml TSR  –  The Senyak Report dots sml

freedom of press (wp transparency report)

The FDA / Zebra Coalition meeting on the Patient Advocate… Stem cells and antigens…Thank you!

(TSR is Here)




And if you missed the links to stories in this issue, here they are in one place:

When is the right time for a stem cell transplant?

Sanofi’s Fedratinib:  the Investigative report on a trial gone bad

When insurance companies say NO!

Blow-out on the long and winding road

Miami — A Reporter’s Notebook

Franz Kafka and the Doorkeeper

TSR Newsletter

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 You can read the current issue of the Q right here! How I treat MPNs? …Silver, Mesa, Hasselbalch, Harrison Aspirin, Platelets and Thrombosis… by J.J. Michiels Interferon instructions for my patients… H.C. Hasselbalch MQJ3 header line

The List — 100+ Patient-Recommended Hematologists

The First Six Combined MPNclinics with Index

The Catalog of Articles. ..

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Tell your story, express yourself, share your experience in your MPN magazine. You can add your comments to MPNforum articles, list your Blog, or write an article. (We’ll even help you get started.)…Letter to the Editor

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© MPNforum, LLC ,, and the MPNforum Quarterly Journal 2014. MPNforum is licensed under a Creative Commons Attribution-NonCommercial-NoDerivs 3.0 Unported License. Unauthorized use and/or duplication of this material without express and written permission is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to with appropriate and specific direction to the original content.



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