International MPN News, Science & Opinion

https://mpnforum.com/march-2014/

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Hi, there… The advance copy of tomorrow’s MPNforum is now available:  https://mpnforum.com/march-2014/
This is a pre-publication copy so, as usual,  please let me know if you find any errors that require fixing, any links that don’t work, etc/
This is a BIG issue and historic in several ways.
The second phase of the Fatigue Projectpower tool is now available and there are links all over MPNforum.  (Here’s another: https://mayoclinicsrc.qualtrics.com/SE/?SID=SV_8lgfxg1vNjq8h8N)
If you’re an MPN patient PLEASE get that survey back to the Mayo Clinic folks as soon as possible.  This evening is possible.  It’s the missing piece between us and relief from Fatigue via interventional clinical trial.
There are old and new friends in this issue, breaking news from the Foundation, an update on Harvey’s journey, the latest on Imetelstat and an  exciting, expanded MPNclinic so you can finally get the definitive answer:  Is an MPN cancer?
    Love to hear from you.
         Zhen

Comments on: "Advance Issue – March 2014 — Now available" (7)

  1. Jane Frantz said:

    As always, thank you Zhen. I saw my hematologist at the Abramson Center at UPenn today and he was impressed with my knowledge of recent research advances, mostly due to your fine reporting! Survey is completed!

    • Your knowledge of research findings is the result of your own good work, Jane. Reporting is one thing but the hard work of sifting through information and learning is up to each of us. Good for you! I hope you can reach out to help others along this way. Glad you completed that survey, it is more critical than most of us realize to provide these data to the good folks at Mayo Clinic (Scottsdale).

  2. Julia Olff said:

    Thanks for posting survey. Completed!

    • Great, Julia… now can you forward that link to your MPN friends. Mayo Clinic Drs. Mesa and Scherber need all the data possible to build power into the survey results. I’m optimistic…Help is on the way. Thank you!

  3. Patricia Cooper said:

    Such a great issue with so much information! I did my survey last night. Thanks for the gentle reminder. I tried to go back and read what you had written about PRM-151, but I can’t find it. Did a search for it, but no luck. Can you help me find it?

    Thanks, Patti

    • Hi, Patti.. Thanks for completing the survey. Please let your MPN friends know…we’re counting on Dr. Mesa on Dr. Scherber’s team to help us deal with this fatigue.
      The most recent piece on Promedior was about its Round Two. It’s in TSR: https://mpnforum.com/a-table-tst/january-february-2nd-ed

      The original was “Reverse Fibrosis” https://mpnforum.com/reverse-fibrosis/

      We have a Search Box in the sidebar of most pages. Sounds like you might have used it. Sometimes it works well but it;s definitely worth trying if your want to dig something out of the archives. And, of course, there’s the Catalog itself with a link on the home page, down at the bottom. You can scroll through by photo and link on most articles. Good luck

  4. Kathy Van Meter said:

    Survey completed and sent! This study continues to be a fine opportunity for us to make a difference.

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