International MPN News, Science & Opinion

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Hi, There…

This Friday, MPNforum Magazine celebrates its two year old birthday… with a report on the Fatigue Project and MPN Patient Survey results…a new MPNclinic answering questions on erythromelalgia, headache, transfusion dependence and more…  An advance issue will be available to Subscribers tomorrow.

This March 15 issue also includes the three part article, The Interferon Papers,  tracing the history, development and current use of the interferons in MPN therapy.  You can see Part I, the Discovery of interferon, now, right here.

The following is a page to appear in the MPNforum Magazine on Friday.  We’ve talked about the on-going planning sessions.  I wanted you to see the announcement of our first major change in format… and the kind of abstracts and links we plan to publish in the new MPNforum  Monthly.

If you have any questions or reactions to the changes, I’d love to hear from you…either through the public Comments box at the bottom of this post or private e-mail to me, zhenyasenyak@gmail.com

Cheers,

Zhen

With this issue, MPNforum Magazine completes two years and is moving on.

It’s time for a change

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And you can lend a hand.

Over the past two years – with the pooled creative resources of the MPN community –– we have reported, advocated, educated exposed, investigated, fulminated, translated, and sometimes even entertained through a monthly blizzard of articles, photos, columns, videos, features, cartoons and news coverage.

Now that there are many thousands of fellow patients on board with the Forum and we’re supporting a couple of on-going serious projects — the exploration of means to relieve MPN-related Fatigue through the Fatigue Project and the awesome MPNclinic staffed by the world’s top MPN specialists…plus those established resources folks count on like the List of Patient- Recommended Hematologists, and the Catalog of Abstracts covering hundreds of people, articles, profiles and science– we have to get serious….for a change.

MPNforum with its freebooting attitude – surviving solely on volunteer work, creative contributions and small donations – has an obligation to change in order to survive.

There are better ways to fulfill our mission to provide the international MPN community with an active, colorful, accurate outlet for opinion, news, science, stories.


MPNforum will become two publications: The MPNforum Monthly and the MPNforum Quarterly.

The Quarterly, debuting June 21, will be more like a journal with longer, in-depth treatment of science, procedures, medicine, stories. It will be available in both on-line and print formats.

The Monthly will be a bit like its mother, MPNforum Magazine, but focused on exposing the wide array of materials published on MPNs worldwide each month Instead of three or four feature stories monthly we’re aiming a rich offering of photos and abstracts with links to articles, blogs stories, posts, poems, lists, social media, scientific publications and flat out news. The questionnaire will help us zero in on what you’re looking for in MPN coverage.

Here’s Genny’s Hope Foundation, a live example of a story we would link to in the new MPNforum Monthly…and a worthwhile place to visit in any case:

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genny's hope foundation

Genny’s Hope Foundation

Genny’s Hope Foundation sponsors a website designed originally by Ann Haehn in support of her daughter, Genny, Kathyfacing a stem cell transplant to address her myeloid disorders. The site has become a go-to place for information, stories and encouragement for SCT patients, caregivers and donors. The current page features the story of Kathy who failed one SCT and is now readying herself for another.

https://www.facebook.com/GennysHopeFoundation

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