The October 15 issue is taking shape. Before deadline pressure builds up, I wanted to bring you advance word on things.
This coming issue is extraordinary. It carries a record number of stories, stories from around the world… and the direct testimony of 22 early users of Jakafi, sharing their firsthand experience. Along with their stories, many writers send along notes saying, “I hope this helps.”
The October 15 MPNforum carries the MPNclinic supplement, this one containing nearly 100 answers to 35 patient questions. These are the expert opinions of seven of the world’s most highly regarded MPN specialists. Their selfless sharing of knowledge, of caring, is something we’ve come to rely on in our MPN community.
Our MPNs may be a rare disease but with it comes the blessing of a rare and caring community.
In reality, we worry about each other. We reach out to each other. And those in our community who are caregivers and healthcare providers share in that honest concern for our well-being, wince at our pain, and rejoice in our recoveries.
Moving ahead into next year, MPNforum Magazine faces extraordinary opportunities and challenges – needs for equipment, software. programming, editors and volunteers. (We’ll send a note along on that in a day or two.) We want to expand MPNclinic, support fund-raising activities devoted to MPN research,and extend direct patient outreach and upgrade the magazine. Together,we can do it,
Finally, those who share their stories in our pages welcome your responses… so do consider sending along a comment when something moves you.
Hope your Fall is off to a rollicking start,