..the MPN community's hometown paper

Summer, 2014

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 SUMMER, 2014

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VERSTOVSEK

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Photo: MPN University

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finger pointing small Special July, 2014 Bulletin… The MPN community loses a friend… A major new MF clinical trial launches… A chance to do good… Patient Advocate professional development program…

Click here for the Bulletin.

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In this issue…

Clinical trials…

PRM-151 –Can fibrosis be reversed?  Verdict in clinical trial. 

PV and Jakafi — Good results, unanswered questions.

Pacritinib — low platelets, no problem?

Stem cell transplant

Considering SCT? David Steensma and Claire Harrison answer the critical first questions. 

Patient stories…

A giant step for Harvey Gould… Chris Harper on SCT…PRM-151 Patient F tells her story…Plus a new and expanded Map and List of Patient-Recommended Hematologists.

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Contents

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PV and Jakafi — One question answered, a big one remains... All about pacritinib…  (Read it Here)

PRM-151 –Gutsy attempt to reverse fibrosis, first reports. (Read it Here)

All about pacritinib  (Read it Here)

Voncille Fryou, PRM-151 Patient F, tells her story. (Read her story (Here)

Thinking SCT?  Two experts answer key questions.  (Here) Chris Harper’s SCT story (Here)

Harvey Gould, out of the woods… (Here)

TSR…No drugs, no surprise. What can we do? (Here)

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 June 20 the Summer issue of MQJ will be published featuring a panel of world class stem cell transplant specialists covering the most common and critical patient questions.   You can read the current issue of the Q right here! How I treat MPNs? …Silver, Mesa, Hasselbalch, Harrison Aspirin, Platelets and Thrombosis… by J.J. Michiels Interferon instructions for my patients… H.C. Hasselbalch MQJ3header line

The List and Map of Patient-Recommended Hematologists -

The First Six Combined MPNclinics with Index

The Catalog of Articles. ..

Subscribe to MPNforum

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Tell your story, express yourself, share your experience in your MPN magazine. You can add your comments to MPNforum articles, list your Blog, or write an article. (We’ll even help you get started.)…Letter to the Editor

For information

Contact: ourMPNforum@gmail.com

© MPNforum, LLC , MPNforum.com, and the MPNforum Quarterly Journal 2014. MPNforum is licensed under a Creative Commons Attribution-NonCommercial-NoDerivs 3.0 Unported License. Unauthorized use and/or duplication of this material without express and written permission is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to MPNforum.com with appropriate and specific direction to the original content.

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Comments on: "Summer, 2014" (1)

  1. Zhen and the team never disappoint with their up to date information on MF, ET and PV.
    They manage to get the best reports from Doctors and drug companies regarding treatments and clinical trials.
    Summer 2014 report is another great issue and I think we are all lucky to have these people on our side.

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