- An End to Hostilities
- Rolling out the big guns….
- The Long and Winding Road
- Through the Looking Glass… May, 2012
- TSR-July 2013
- Zhenya’s Book of MPN Heresies
- ‘Twas the night before Christmas
- 23andMe – the MPN DNA offer
- 24 hours around the world
- A Birthday Party Invitation…
- A fixer of everything
- A letter to Harvey…
- A love letter to Miriam
- A love story…
- A lucky duck
- A myeloproliferative neoplasm….why me?
- A Primer on Blood Clots and Thrombosis
- A reflection – When survival is not an option
- A second chance at life
- a table tst
- A Transition Page
- A valentine from the long and winding road
- A village in a cloud
- A Vote of Confidence
- a-embed
- About Jenny
- About MPNforum
- Add your hematologist
- After ASH: Drugs and Genetics.
- Ahhh…The Single Life
- Alan Caruthers at MDCC for SCT
- Alison’s story…
- Alt MPNB
- ALT MPNC
- An MPN Patient Advocate in a new clinical trial landscape
- An MPN Patient Registry
- An Open Letter to Paul Friedman, MD and CEO, Incyte
- And now, pacritinib…
- Animal House
- Ann Brazeau — The long journey
- Ann Haehn remembers KDF
- Anna
- Anthony Tiano — Close-up
- apoptosis
- Apple and the dishes…
- April 2014
- April 15, 2013
- April 2012 — PREVIEW PAGE
- April Special: The Story Issue
- April, 2014 Contents
- Arch’s Corner
- Arch’s Corner — Ascites and Edema
- Arch’s Corner – The care of a reluctant loved one
- Arch’s Corner – April 2012
- Arch’s Corner – January
- Arch’s Corner – May
- Arch’s Corner — October, 2012
- Arch’s Corner — (March)
- Arch’s Corner — Anti-oxidants – July 2012
- Arch, a tribute
- ASH – A Reporter’s Notebook.
- ASH 2014 SNAPSHOT: Dr. Elizabeth Trehu and PRM-151
- ASH 2014 – SNAPSHOT. . . The Fatigue Project and Dr. Robyn Scherber
- ASH 2014 – SNAPSHOT: Dr. Jennifer Doudna and CRISPR Cas9 Collaboration
- ASH 2014 SNAPSHOT: At play in the House of Incyte
- ASH 2014: Is it too late for Momelotinib?
- ASH 2014: SNAPSHOT: Morgan Lam and Imetelstat
- ASH 2016 – Top Takeaways by Top Docs
- ASH Gallery
- ASH Gallery of Technical Posters and Slides
- ASH impressions
- ASH Orlando — down and dirty
- ASH Special Report: Silver on Interferon
- Ask the doctors
- August, 2015
- Autumn, 2015
- Autumn, 2016
- Banjo camp – PDF to JPG
- Barbara Kurtz: 30 years on hydroxyurea
- Bare, naked DNA
- Beatrice Larroque… Looking back
- Behind the collapse of Sanofi’s Fedratinib… a TSR Special Report
- Behind the Lab Door
- Bente’s Story
- Betting the farm on imetelstat
- Between two worlds…`
- BLOG Forum
- Blood and Bone – the factory floor
- Body MInd Spirit (Rec). Sept
- Body-Mind-Spirit …The Power of Love and Prayer
- Bone marrow biopsy — Not as sure as you think
- Bonnie Evans and Charlie Nielsen remember Kathy…
- Brain fog and the new normal
- Breakfast with Harvey
- Build a Wall….Send a Selfie
- Button test
- Button Test
- button test
- Cachexia
- Call for caregivers
- CALR: JAK for the rest of us
- Calreticulin — Where it lives, how it works and why we care
- Can we really make a difference?
- Can you volunteer for just one hour?
- CAR-T has arrived in the clinic
- Cardiff — the Patient Forum
- Catalog of MPNforum Articles
- check
- Chris — BMT
- Chris Harper remembers KDF
- Chris Harper’s SCT story
- CHZ868
- City of Hope
- Clinic Draft Head
- Clinical Trial
- Clinical trial and off label drugs
- Clinical trial? Karen’s choice.
- Clinical Trial? Think again.
- Cold Spring Harbor Lab — Special Report on Gene Editing
- Columns
- Come to the Party…
- Coming of age
- Competition vs Cooperation — who wins?
- Concept grants target fibrosis
- Confessions of an MPN Hero Whore
- Contact
- Contents – Sept/Oct
- Contents: Oct./Nov.
- Cpf1 – A faster, smaller, better CRISPR enzyme?
- CR&T Symposium: Two Views
- CR&T Ninth Annual Patient Symposium
- Crazy
- Crazy little
- CREATE invitation draft
- Crisis in MPN Care –and what You can do about it.
- CRISPR Madness
- CRISPR/Cas9: Gene editing with precision
- CRT – Ann Mullally, MD
- CRT – David Boule
- CRT – Inflammation and Dr. Hans Hasselbalch
- CRT -Marina’s Conference Notebook
- CRT– A Reporter’s Notebook
- D. Claire Harrison — Rethinking ET and PV
- Dave A walk in the woods
- December 2015 – The ASH Report
- December, 2013
- December-January 2014
- Di Gantze Velt
- Diet — a frontline of defense.
- Dirty Bird Pottery – Leaving ET behind.
- Do it for love
- Doc, how long do I have?
- Docs workup page
- Dolf’s Story
- Donate 2017
- Donate Thumbs up
- Dr. Jason Gotlib at the Foundation Symposium
- Dr. Richard T. Silver on the importance of bone marrow biopsy
- Dr. Ruben Mesa — “a serious man with an open heart.”
- Dr. Ruben Mesa — New Texan, Old MPN Friend
- Dr. Ruben Mesa — the ASH videos
- Dr. Srdan Verstovsek: Therapeutic advances in MPNs.
- Drill
- Drop the D…or else
- Drug of Choice
- Easier living on my own
- EBMT Transplant Patient/ Family Day Program
- Effective drug: MPN fatigue, anemia, inflammation
- Eleven stories…an introduction
- Elizabeth Goldstein: When interferon fails
- Ellen’s List
- End of an era…A last chance
- Enjoying every morning
- ET Pajama Party
- Eugenics: In the DNA of Cold Spring Harbor
- Expanding horizons in the MPN World….
- Facebook — MPN lifeline or sinker?
- Facebook and the Double MPN Life
- Facebook MPN — Like or Unfriend?
- Fall, 2012…MPNclinic, News and Features…
- Fall, 2017
- Fallout from 23andMe…on to Patient Support Lists
- Fatigue – ASH
- Fatigue Edit
- Fatigue Project — A Progress Report… Survey Form
- Fatigue Project Research
- Fatigue the Secret Killer
- Fatigue? We have the power tool.
- FDA — FInal Draft Notes,
- FDA and the Banana Republic for Which It Stands
- FDA and the MPN Patient Advocate Program
- FDA Report Card
- February 15 – Splash Page
- February, 2012
- Five years and I’m still here
- Food for Thought — November
- Food for Thought … Nathalie Cook
- Food for Thought-x – November, 2012
- For all things, a time…
- Forum July 2013
- Four months of CRISPR
- Free and independent
- From Isaacs to Silver
- From Isaacs to Silver — Interferon and the MPNs
- From the Porch
- From the start line
- G.G.: a trillion healing kisses
- Gene edited SCT is already here
- Genetics — Crash MPN course
- Genny — A Mother’s Tale
- Genny’s Story, Part III
- Genny, the transplant begins…
- George Church on synthetic biology and MPNs.
- Geron presents….IMETELSTAT at ASH
- Get involved in 2012 — Join your MPN friends at the Forum
- Getting to a joyful place…
- Go Sevy…G0!
- Go take a hike!
- Google verification
- Got a good Doc…Share the news!
- Got Science? The Foundation goes fishing…
- Harriet
- Harriet Gilbert’s waiting room
- Harvey — “… stories of the road.”
- Harvey — A path out of the forest
- Harvey farewell
- Harvey’s gift
- hem tryail
- HEM WORKPAGE
- Highlights of the past year
- Honey
- Hope and doubt — June, 2012
- How fast and how far will your MPN progress?
- How I got my ET diagnosis
- How to rock the boat
- HU vs. INF. Round One, Title fight.
- I’ll take what I have…
- Ian
- Ian – Celebration of a life
- Ian Sweet — the human face of blood cancer
- Impressions of ESH
- In the beginning.
- Incyte Awareness…and other gala events
- Incyte Cares — Op-Ed
- Incyte cares… but about what?
- Interferon Archive
- Interview Paul Friedman – CEO, Incyte
- Intro to Real Meaning of Caring
- Introducing the New Editorial Board
- Introducing….The LIST
- Is it time to rethink Jakafi for MF?
- It’s a living
- It’s time to move on
- Jacob Corn joins mGEN scientific board
- Jacob Corn: “No one’s hiding their stuff.”
- JAK at ASH…A PROLIFERATION OF Uninhibited PROMISE
- JAK STAT PATHWAY FRAGMENT RECOVERED
- Jakafi — MPN Event of the Year
- Jakafi and broccoli – July, 2012
- January 15 2014 —
- January 15, 2013 Splash
- January, 2015
- January, 2016
- January-February, 2014
- Jennifer’s tribute
- Jenny’s gone.
- Jeremy’s journey to Interferon
- Jeremy’s MPN Life (March)
- Jeremy’s MPN Life — PV from HU to INF
- Jeremy’s version 2/5
- Jim Flynn remembers Kathy…
- Joyce
- Julie Libon and family — “Take a hike!”
- July 2012 – CONTENTS
- June 2013 Monthly Forum
- June, 2012
- Last Issue of the Old MPNforum
- Last two days
- Layout
- Leaping barriers
- Lend a hand…if you can.
- Letter from the Mayo Clinic
- Letter to the Editor
- Letter: Jerry Spivak, MD
- Letters – Spring 2016
- Lisa’s Eulogy
- List of 100+ Hematologists
- List of Hematologists
- list replace
- Living with a chronic disease
- logo
- Long and Winding Road – April, 2012
- Long and Winding Road — Let the REAL chemo begin…
- Long and Winding Road — with blowouts.
- Long and winding road leads to Apheresis
- Looking ahead
- Looking back, looking ahead
- Magician at the Crossroads
- Manuela
- March 15, 2013
- March, 2012
- March, 2014
- March, 2015
- March, 2016
- Margaret’s story
- Marina Sampanes Peed remembers KDF
- Marina’s notes
- Marlene Forstrom
- Mary’s diagnosis
- Masthead – February 15, 2013
- Masthead – November, 2012
- Masthead – October, 2012
- Masthead March 15, 2013
- May Monthly Forum
- May, 2012
- May, 2014
- Mayday – May 2012 Contents
- Mayo Clinic launches clinical fatigue study
- MD Anderson MPN Meeting — Host: PatientPower
- Medical disclaimer
- Message in a Bottle
- MF Challenge Grants
- Mid-November CRT Special
- Mind Body Spirit – A preamble
- Mind-Body- Spirit (Feb)
- Mind-Body-Spirit (March)
- Mind-Body-Spirit April, 2012
- Mind-Body-Spirit (June) Affirmations
- Mind-Body-Spirit — The Challenge (July, 2012)
- Mind-Body-Spirit (Oct. Rec)
- Mind-Body-Spirit – May
- Mind-Body-Spirit (rec.) -Dec..
- Missing Seat at the Table
- Momelotinib – “Things are very good.”
- Money, Marketing & MPNs…
- Mourning on the Long and Winding Road
- Moving ahead… Update
- MPD-RC Newsletter
- MPD-Research Consortium
- MPDchat: The Last List
- MPN A&E Seattle
- MPN Action — Community and Cooperation
- MPN Clinic Roundtable — to make a difference
- MPN Community Support Portal
- MPN CRISPR – What are we waiting for?
- MPN Drug Wars
- MPN Hero or Super Sell-out?
- MPN Heroes 2015
- MPN Life (Feb.)
- MPN Life – The battle for sanity
- MPN Life — Fatigue
- MPN Life — Road warrior
- MPN Life — Vitamins and Supplements
- MPN Life: Resolutions for the MF Patient
- MPN LIFE: Exercising with MF.
- MPN specialists weigh in: Mascarenhas, Mesa, Spivak, Stein
- MPNclinic – February 15, 2013
- MPNclinic – January 15, 2013
- MPNclinic – March, 15, 2013
- MPNclinic — 3 steps to get your questions answered
- MPNclinic — The Press Release
- MPNclinic Four
- MPNclinic March Roundtable
- MPNclinic Oct Workup
- MPNclinic Special Section — October 15, 2012
- MPNclinic Special Section — September, 2012
- MPNclinic…November 15, 2012
- MPNforum – Late Summer 2013
- MPNforum — Summer, 2015
- MPNforum News & Notices
- MPNforum Operational Report
- MPNforum’s TSR: 10 MPN Heroes in 2014
- MPNRF: Research for a Cure
- MRF Fatigue Project – Interim Report on Interventions
- My Dinner with MPN-NET
- My life of crime
- My Online Mother
- My Robert – a tribute
- MyMPN — The Patient Registry
- Nathalie Dec 17
- Nathalie’s discovery
- New Orleans — Report on a Field Trip
- News Brief — Bay Area MPN Event
- News Briefs… September 15, 2012
- News Briefs….October 15, 2012
- News Briefs…February
- News Briefs: January 15
- News: CRISPR comes to MPNs.
- No secret handshake required….
- Notes from Cardiff
- November 2013
- November, 2014
- November-December
- NYC
- NYC goes MPD for a day
- October Recipes from the MPN Kitchen
- October-November…The Jakafi Report
- Of mice and men…
- On death and dying
- On Gratitude
- On MPN stem cell transplantation
- On the pathway to beat polycythemia vera
- On trial for her life
- On trial with CYT387
- On trial: Hydroxyurea versus Interferon
- One hour
- One World, One MPN Community
- otter
- Pacritinib — Howard Lewis
- Pacritinib — the patients abandoned
- Page List Mar28
- pages
- Pages-Date
- Painless BMB…well almost.
- Panic Attack!
- Pathway to break-out PV therapy…
- Patient list of good hematologists
- Patient Safety Report on Sanofi’s aborted blood cancer drug trial
- Patsy
- Peppe – The fixer of everything
- Planning session…
- Poetry Corner
- Poetry Corner – Take a Break
- Poetry Corner – Arnie McConnell (July)
- Poetry Corner – April
- Poetry Corner — June, 2012
- Points of Light —
- Popular features
- Posts
- Posts
- PP ASH
- pptext
- PRM-151 — Trial verdict
- PV — The road to distraction (Music mix)
- PV and Jakafi – Fair trial?
- Reach out and touch somebody
- Real Heroes
- Recipes from the MPN Kitchen
- Recipes from the MPN Kitchen (November 2012)
- Remembering Karl
- Remembering my Dad, Harvey Gould…
- Response to attacks on interferon — An open letter
- Reverse fibrosis
- Reversing fibrosis
- Robert Kralovics
- Robin Filshie -HL2
- rock on image only
- Rock on– Take two.
- Ross Levine, MD on CHZ868
- Ruben
- Ruben’s Raiders
- Ruxolitinib on Trial
- s upershot
- Sam’s Art
- Sam, Remembered
- Sanofi — Coming out of the Shadows
- Sanofi out of the JAK-2 MF Biz
- Sanofi trial on hold
- Sasha Senyak
- Schafer — MPN Physician/Scientist
- Scientific and Clinical Board of Advisers — MPN Genetics
- SCT Roundtable — The first 11 questions
- See Jane run — to MF remission via Accupuncture
- September song
- September, 2014
- September-October, 2013
- Seven years of silence
- Sevy’s Ride to Conquer Cancer
- Shalom, Charlotte
- Should Medicare cover MF Stem Cell Transplant costs?
- silver portrait
- Six Clinics — The Index Project
- soft focus
- Solo
- Soundtrack for a PV journey
- Special Bulletin — Jakafi Jacks-up Price
- Special Bulletin FB Discussion 10/2-10/3
- Special Bulletin: Pacritinib
- Special Editorial Edition – September, 2013
- SPECIAL REPORT – Getting to ASH
- Special Report: Kelley Lanier, victory over adversity
- Special Report: ASH-2012
- Special Report: Interferon vs. Hydroxyurea
- Special Summer Bulletin – July, 2014
- Spring, 2015
- Spring, 2016 — An Introduction
- Spring, 2017
- Spring- 2016
- Stand with us
- Star Doc to Lone Star State
- Stem Cell Diary
- Stem Cell Transplant
- Stem Cell Transplant — Forum meets Facebook
- Stem Cell Transplant — Front line reports
- Stem Cell Transplant — the Musical
- stem cells
- Straight talk about MPNforum
- Subscribe to MPNforum
- summary text ctalog
- Summer Supplement
- summer supplement PrntFrndly Ver – July 2012
- Summer Supplement, 2012
- Summer, 2014
- Summer, 2016
- Summer, 2017
- Susan Leclair: On reading a bone marrow report.
- Syria
- Tefferi Drops the Other Shoe
- Tefferi speaks…
- Tell a story…
- testlogo
- Thank you, Dr. Tefferi. Enough already, please.
- The accidental hematologist
- The binder goes everywhere
- The Caregiver
- the charming gardeners…
- The Choice: Clinical Trial vs. Stem Cell Transplant
- The CREATE Seminar
- The Difference
- The Doorkeeper
- The Empowered Patient
- The Empowered Patient (Feb.)
- The Empowered Patient – Health Coaching
- The Empowered Patient (March)
- The empowered patient – April, 2012
- The Empowered Patient – Connect with Others
- The Empowered Patient – May
- The Empowered Patient – Oct. 2012
- The Empowered Patient – Stem Cell Transplant
- The Empowered Patient — June 2012
- The Empowered Patient – A Great Time to Set Goals
- The Empowered Patient – July, 2012:
- The Empowered Patient- January
- The Fatigue Project
- The Fatigue Project Makes a Splash at ASH
- The Fatigue Project Survey
- The forgotten MPN Patient — Proliferative conferences, an editorial
- The Forum….7 Goals for 2013.
- The Foundation and us
- The Good Hematologist
- The Good Patient
- The HU INF Addendum – Trials, Pricing, Resources
- The Interferon Papers – Part I (DIscovering interferon)
- The Interferon Papers – Part II (Bringing INF to MPNs)
- The Interferon Papers – Part III (INF and ET, PV, and MF)
- The Jakafi Report
- The Joyce Niblack/Mayo Conference
- The List
- The Long and Winding – JAN
- The Long and Winding Road (10/12)
- The Long and Winding Road (June 2012)
- The Long and Winding Road (Feb.)
- The Long and Winding Road (March)
- The Long and Winding Road – May
- The Long and Winding Road -full-blooded Irishman
- The long and winding road … (July, 2012)
- The Long and Winding Road…doesn’t pass GO
- The Long and Winding Road/ Cliff
- The Marijuana Papers
- The Miami Meeting
- The Missing Patient.
- The MPN Life by Jeremy Smith
- The MPN Patient Rights Petition
- The MPN Patient’s Dilemma
- The MPN-Related Fatigue Project: MRF UPDATE
- The numbers game
- The Pacritinib Affair – Screwed again.
- The Patient Playbook
- The People, Posters, Exhibits of ASH New Orleans
- The Road to Distraction
- The Secret Killer…
- The secrets of JAK2 inhibition
- The Senyak Report
- The Senyak Report (TSR) – January 15, 2014
- The Senyak Report – June, 2013
- The Silent Gene
- The single life
- The skin I’m in, the marrow within
- The two faces of Rachel Haurwitz
- The unfaithful Mr. Harper.
- The unlikely birth of MPNs
- The waiting room
- The Year in Review
- The year’s most important MPN event
- These are historic times.
- Thinking imetelstat? Think again.
- This could save your life
- Thumbs up for the Forum…
- tony green
- Too old for a stem cell transplant?
- Tools for awareness…
- Transplant Diary…
- Transplant Family Event
- trial
- trial
- Triumph of the MPN Spirit
- TSR Summer 2016
- TSR – Summer 2014
- TSR – April, 2014
- TSR – March, 2014…
- TSR – May, 2014
- TSR — July-Aug 2015
- TSR — Mid-November Science Digest
- TSR — October-November 2013
- TSR — Sept.-Oct. 2013
- TSR — September 2014
- TSR — the Summertime Report
- TSR March 2016
- TSR- Autumn 2015
- TSR– December 2013
- TSR…Summer, 2013
- Use it or lose it
- Vote
- Waiting for Chris
- We are the network
- We can’t do it alone
- We need you…not your money
- Web Publishing Workshops/Internships
- West Palm Beach MPN Conference…in deep winter!!!!
- What are we to each other?
- What fruit, what sweet, should be avoided at all costs when you’re on Jakafi
- What is the Fatigue Project
- What’s JAK2 anyway
- What’s with MPN-NET?
- Whatever happens, I’m ready.
- When clinical trials turn deadly.
- When DNA results get personal
- When insurance companies say no.
- When the experts are wrong
- Who goes there?
- Why do we have no new drugs?
- Widget Page
- Winter – ASH 2016
- Winter, 2014-2015
- Workpage–211 Hematologists
- Worksheet 211 Hematologists
- You and the future of medical research
- You are the difference
- Z Pages without Links
- Zebra Coalition Petitions FDA Commissioner
- Zebrafish, melanoma and MPNs
- Zhen – Patient Power Interview at ASH New Orleans
- Zhen mid deck photo
- Zhen on fiddling…
Science & Medicine
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