Science & Medicine

Got a good Doc…Share the news!

Patient – Recommended Hematologists

The List — a compilation of patient-recommended physicians —  is a service offered to the entire MPN community. 

Publishing a list of recommended hematologists, by location, enables MPN patients — whether newly diagnosed, traveling, or seeking a second opinion — to get referrals  from those of us who use those medical services. You’re welcome to recommend more than one physician or hematologist who, in your experience, warrants inclusion in The List.

 A hematologist familiar with MPNs is a rare commodity. When you find one who understands this disease, communicates well enough to help you understand it, listens to your symptoms with empathy, and provides helpful advice and treatment – well, you have hit the hematological jackpot. We’d like everyone to know about these fine doctors and to do that we’re publishing an on-going list of recommended hematologists, openly available for review.

If you want to add your doctor to the recommended list, please fill out and submit this form. Please insert your hematologist’s contact information in the appropriate field, if available.

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Comments on: "Got a good Doc…Share the news!" (7)

  1. Why do you recommend this hematologist?: Dr. McMahon has the qualities that we patients value the
    most. He is immensely qualified in the specific area of
    MPNs. He has a subspecialty of clotting disorders, and
    with ET patients the behavior of clots is vitally important.
    There are an extraordinary amount of papers he has written or co-written. Dr. McMahon is the expert we all need on our team. I can’t recommend him highly enough.

  2. I am so excited about finding this info as I do Not have a local heme/onc that I am aware of so been looking for ‘the list’ over a week…excited to see it will be coming this month! Thank You.

  3. When will the list be updated again, last update was in 2018. I submitted my doc’s details but it is not showing due to list not being updated.

    • You’re quite right. We have been holding off until publication of our Spring issue mid-May although Ellen Jacquart has been collecting and curating all entries in the meantime. Sorry for the delay.

  4. We’ve just started building the LIst from patient submissions. It will be several weeks, I’d think, before the first version is publicly available here. The List will be continually updated as candidates are submitted. Ellen is working on the database now. This is a critically important tool both for MPN patients newly diagnosed and not knowing where to turn as well as those of us who often need a second — or third — opinion. Many patients who have already submitted their recommendations are willing to be contacted via e-mail by other patients to share their experience. We want to be sure the privacy of all concerned is protected.

  5. Where is the list of MPN doctors?

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