Science & Medicine

Thumbs up for the Forum…


The Spring fundraiser is off to a great start. As of now, MPNforum is being brought to you by a small all-volunteer crew  and 56 other patients donating from $5 – $100.   There’s still time to stand up and be counted.  Thank you, all!


We would all gladly chip in a few bucks if our neighbor’s life depended on it.

It does.

Over the past three years, our own lives and our neighbors’ lives have depended on the range of services and news provided by MPNforum. And with your support, physicians, patients and caregivers together have helped our MPN neighbors find hematologists to work with, sort through therapeutic options, challenge conventional wisdom and explore scientific discoveries.  

This is the start of the April MPNforum Small Donation Program. 

We don’t need much.  With very low operating costs and no paid staff our financial needs are small…but real.   A ream of paper now costs $7. Our copy paper costs are over $150 a year. No big deal on its own… but we don’t bill readers for typing paper.

Or anything.

Beyond basic operating and production costs, the kind of investigative journalism and advocacy MPNforum does requires travel and incurs expense.Donate thumbs up And we have no other source of revenue than each other. No grants, no corporate sponsorship, no advertising.

Promoting a Patient Advocate for every MPN clinical trial – something clearly necessary after the Sanofi blowup and secrecy surrounding Imetelstat’s current clinical trial hold – means travel, lodging, negotiation with the FDA, drug manufacturers, institutions, investigators.

Helping to bringing interferon out of its off-label status in the US means publishing the Open Letter and Comment of Dr. Hans Hasselbalch and Dr. Richard Silver. It also means distributing a press release to hundreds of media outlets. And a bill for $269.

The Fatigue Project we launched in October 2012 has, thanks to Dr. Ruben Mesa and his Mayo Clinic (Scottsdale) team reached its final data acquisition stage before clinical trial design. Meetings, conferences, reports, surveys, progress reporting from ASH kept all of us in the loop every step of the way. The bill is paid through Small Donations.

The Small Donation Program is designed to help us all get involved in producing our MPNforum Magazine regardless of financial status. Any donation from $5 up to $100 qualifies. (Gifts over $100 will be refunded.)

With over 280,000 visitors to our pages, raising the $3500 to meet our Spring goal should be a slam dunk. It’s not.  Only a few dozen readers carry the ball for the rest of us.

If MPNforum is part of your MPN life, please do your part. It’s easy. One reader makes a $5 monthly contribution, about the cost of a Starbucks coffee…but at $60/year that’s a generous donation. PayPal accepts every credit card. Push the button, donate a few bucks and you’ve made your contribution to bringing high level scientific and news reporting to your friends in the MPN community and voiced your support  for not-for-profit patient advocacy.

No tax deduction…but a dynamite return on your money. It only happens after you step up.

                             Thank you… just click on the button to get started.Donate thumbs up

If you prefer, you can mail your check to: MPNforum, PO 17142, Asheville, NC 28816

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