Science & Medicine

Posts tagged ‘clinical trials’

Summer 2015 — Advance Issue Available Now



The advance Summer, 2015 issue of MPNforum is now available to Subscribers and Friends of the Forum.

The Clinical Trial option is a card we know– or at least hope — we can play if and when we need it. Given the inherent risk and recent history of clinical trials the arrival of Margaret Warner, the first MPN Clinical Trial Patient Advocate, is cause for celebration.   Her story and a picture of the new clinical trial landscape is in this issue.

One focus this time around is Points of Light, a celebration of those who illuminate, who lighten our MPN burdens. This weekend the Most Important MPN Event of the Year takes place in a room filled with some of those folks.  It’s a secret meeting with an inside report from someone who knows what happens behind closed doors.

There’s the story of another Point of Light, a young woman who refused to take her MF diagnosis sitting down.  The results roll out this Saturday.

There’s a lot more in this issue – a chance to comment on Medicare covering SCT medical expenses…The full report in the journal Blood on the Fatigue Project and Mayo Clinic (Scottsdale) work..exploring the impact our meds and other health issues have on MPN fatigue… and lots  more in TSR and our regular features.,

Enjoy. celebrate the Summer…and be well,


*As ever, the “TAKE ME BACK TO THE CONTENTS” link won’t work until publication date, tomorrow, and forwarding your discovery of errors and typos in advance of that pub date to me at  would be greatly appreciated

Summertime is here

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Hi, there… It’s just minutes before midnight and the Summer Issue of MPNforum is ready to ship to Subscribers.

That is: links should work, most everything is in place, it’s been proofread and edited.  Still, we could use your help in reviewing  stories and passing along  any errors or changes as well as comments before we launch to the Internet.

There are serious stories in this issue and some good news about friends and heavy lifting done by fellow patient Ellen Jacquardt to get the new expanded list together. And, as ever, we’re indebted to the doctors who generously provide their advice and counsel and support.

So enjoy…and please, let’s hear from you… via comments or e-mail (

The Summer Issue is here”




* Remember, the “Back to Contents” link on each page will take you to the old MPNforum home page. We switch at noon tomorrow.

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