International MPN News, Science & Opinion

 

In order to build an inclusive blueprint for the future, The MPNforum Transition Team — Marina Peed, Michelle Woehrle, Ann Brazeau, Jeremy Smith  and David Denny —  is fielding a short poll.  Please take a minute to answer a few critical questions, thanks.

Zhenya Senyak, founder and leader of MPNforum recently announced that he is planning to transition leadership.  The transition team asks for feedback to help inform editorial direction, programming preferences of its MPN community, and invite people to join the team.  Please click and take this quick questionnaire and let your voice be heard! 

 

In order to build an inclusive blueprint for the future, The MPNforum Transition Team — Marina Peed, Michelle Woehrle, Ann Brazeau, Jeremy Smith  and David Denny —  is fielding a short poll.  Please take a minute to answer a few critical questions, thanks.

Zhenya Senyak, founder and leader of MPNforum recently announced that he is planning to transition leadership.  The transition team asks for feedback to help inform editorial direction, programming preferences of its MPN community, and invite people to join the team.  Please click and take this quick questionnaire and let your voice be heard! 

Are you ready to Poll?

 Vote for your new MPN Magazine

In the next day or two the MPNforum Transition Team will post a Poll to help shape your new on-line magazine that will be published with new direction. Please respond thoughtfully and consider your own role in preserving this vital media link for our whole international community of patients, caregivers and physicians.

.MPNforum has always been an independent, patient-supported, patient -run fully volunteer magazine. We have all relied on MPNforum, visiting its pages well over 600,000 times!   More than 200 of us have participated in producing the Forum both monthly and quarterly. Now it’s your turn.

.Express your opinions through the Poll…and let the Transition Team (Marina Peed, Michelle Woerhle, David Denny and Ann Brazeau) at MPNbuddies@gmail.com know you’re willing to lend a hand. Thank you.

 

 

I will miss MPNforum

I will miss MPNforum.  But you don’t have to.

 Health issues and compelling commitments require me to step down as editor/publisher of MPNforum after the Winter Issue, 2017.

 I will miss it.  I have always found MPNforum to be an exciting, interesting and significant part of our MPN community.  Personally exciting because it gave me the opportunity to get frontline exposure to scientists, regulators, drug company execs and MPN specialists. Deeply intereresting in presenting portraits of fellow MPN patients, new drugs in the pipeline, opinions of specialists.

And significant.   MPNforum gave me and so many others the extraordinary privilege of serving patients seeking expanded information on treatment options and connections with others in our community. 

You can step in and make MPNforum an absorbing, exciting part of your own lifeA trio of our community leaders – Marina Sampanes Peed, Ann Brazeau of MPN Advocacy and Education and Michelle Woehrle of the MPN Research Foundation – have stepped forward to lead a transition team to produce the new MPNforum in 2018 and beyond. 

 They need volunteers:   writers, photographers, editors, proofreaders, interviewers, reporters, web people.  You can do yourself and the community a great service by getting in touch with them and lending a hand. MPNforum needs you. Get in touch with the transition team at MPNbuddies@gmail.

   Thanks

Zhen

 

 

 

 

Good morning…

The pre-publication Summer Issue is now available to the family of MPNforum Subscribers.  It is password protected.

The link is:  https://mpnforum.com/summer-2017/      The password is: summer

We publish at 3PM ET today… so in case you note significant errors please let me know at zhenyasenyak@gmail.com so we can make necessary corrections before going public.

  Thanks,

     Zhen

*Note:  The link at the end of each story returning you to the home page will not work until 3 PM.

 

 

 

MPNforum’s Summer issue will be published at 3:00 PM, Wednesday, June 14.*

Last rites for Momelotinib…The raw truth about Stem Cell Transplant…Dr. Ruben Mesa’s stunning announcement…Jane Frantz: acupuncture beat her MF….FATIGUE PROJECT heads for drug/alternatives clinical trial…CONTEST: Name that trial….New Study on Interferon early use…Review: Dr. Jerry Spivak’s take on the state of MPN therapy…And an updated List of 262 patient-recommended MPN docs.  

 All at www.mpnforum.com.  

                Enjoy your summer,

                      Zhen

 

 

 

 

Good morning…   Here your advance copy of tomorrow’s  MPNforum, Spring, 2017

This is a packed issue:   Three storiesPEPPE THE FIXER,  the ROBERT YOU NEVER KNEW and THE BIRTH OF YOUR MPN… plus a fresh update of  List of Patient Recommended Hematologists:  (now 251 MPN docs from 19 Nations)…. Breaking news of the powerful new MPN PATIENT REGISTRY that’s going to improve our odds,..NEWS from patients  around the MPN world…DIET AND INFLAMMATION…an expert panel on SCT from the archives…and more.

https://mpnforum.com/spring-2017/

          Enjoy

                   Zhen

As ever, please let me know if you run across any typos, errors, or problems so we can correct them before publishing tomorrow — ourMPNforum@gmail.com.  Many thanks.

Zhen

  • And of course you’re welcome to express your thoughts in the COMMENTS section that follows each story,.

 

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