International MPN News, Science & Opinion

Last Call

LAST CALL…

For the Very Last Time – MPNforum goes to ASH. Join us

The American Society of Hematology year-end meeting is the MPN science and medicine main event .

In the past 20 years, every single major study, drug, and breakthrough was announced at ASH. Nobody covers ASH like MPNforum… interviews, analyses, reports, photographs. We broke the news on Imetelstat, CAL-R, CRISPR gene therapy, Momelotinib. Pacritinib and much more..

This year, following the stunning cure of a leukemia using gene therapy, we have more reason than ever to drill down into the lab results and reports of clinical trials. It will all be in the December issue of MPNforum…

Your Small Donation can

Sponsor that work…

Support the on-line availability of all back MPNforum backissues…

Help launch MPNforum’s new publication, MPN Science and Medicine.

This is our last call for 2017 Small Donation Sponsors.

Here’s how the Small Donation program works.

Click the Donate button and contribute any amount from $5 to $100nothing higher please. We return the difference and have to pay a fee. Donors will be listed as Sponsors in the last regular issue of MPNforum in December– unless you let us know you refer to be anonymous.

And thank you for your support!
The MPNforum/MPN Science & Medicine team OurMPNforum@gmail.com

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MPNforum, PO Box 17142, Asheville, NC 28816
Donations to MPNforum are not tax-deductible

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Stand with us.

MPNforum Magazine will suspend publication after our Winter issue. All articles, columns, features, lists and resources – more than 700 web pages —  will continue to be available on-line, at http://www.mpnforum.com.  In its place a new family member:  MPN Science & Medicine.  Here’s why:

 A tale of two cancers

From Zhenya: ” It took a second cancer to bring it home to me. MPN research and science is booming.  We are closing in on a cure!

The only therapies available for my recently diagnosed colorectal cancer are variations on the ancient cut, burn, chemo.  In the MPNs and related blood cancers, research and molecular biology have leaped ahead from early work in JAK inhibitors, to CRISPR boosted immunotherapy,– a cure for a leukemia–  PD 1 inhibition, stem cell research, checkpoint inhibitors, combination drugs,  anti-inflammatory studies and the unraveling of associated epigenetics.”

  – a change of focus

 The idea behind MPNforum’s new publication MPN Science & Medicine is to focus on the most significant research and testing affecting MPN therapy, That includes trolling the labs, universities, drug companies and evaluating clinical trials.

One Hillel of an choice

Staffing MPN Science & Medicine there’s a small volunteer MPNforum team that reliably covers news and loyal MPN researchers and medical specialists on our side.. We have the capabilities to research, analyze and report on science and medicine. That’s my personal mission. And to paraphrase the First century Rabbi Hillel, “If not me who? And if not with you, with whom?. nd if not now, when?”

We pay the bills

 To do this work, we pay the bills. The travel, internet, production, equipment, lights, etc. We are a fully independent all-volunteer group of patients and caregivers and accept no ads, no grants, no subscription fees.  Every operating dime comes from the MPN community.

MPNforum is free and independent because of our sponsors. Last year 137 men and women via small donations provided the financial support that kept the Forum freely available on the Internet for our worldwide community  —   12,000 readers per issue and well over 625,000 visitors to our pages.

 And you can join them  right now and become one of the Charming Gardeners supporting our international MPN community  It’s quick and easy

   Here’s how the Small Donation program works.

Click the Donate button and contribute any amount from $5 to $100nothing higher please. We return the difference and have to pay a fee. Donors will be listed as Sponsors in the last MPNforum – the December issue – unless you let us know you refer to be anonymous.

And thank you for your support!

    The MPNforum/MPN Science & Medicine  team
   OurMPNforum@gmail.com

MPNforum, PO Box 17142, Asheville, NC 28816
Donations to MPNforum are not tax-deductible

 

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Money…it’s a trip

Does it sometimes feel like everybody is after your money?

Among charities, refugees, hurricane survivors, abandoned dogs, needy researchers, NPR, cousins and kids here comes MPNforum.

It’s a bad time to be raising funds but we have two pressing reasons. And we don’t need much. The Small Donation Program should cover it.

 First is coverage of the major MPN event  – the big annual American Society of Hematology meeting in Atlanta.  This is a breakthrough year in gene therapy,  combination drugs, new research targets.  MPNforum is accredited press.  We need to cover transportation and lodging cost

Equally pressing is the need to cover all internet and production expenses to make MPNforum available on-line for 2018. As an independent all volunteer patient and caregiver enterprise, we don’t accept grants and don’t take corporate advertising. MPNforum is entirely funded by patients and caregivers.

We know there are far more pressing needs in the world right now.  But our MPN world needs this work to be done. Without raising sufficient funds we’ll do the best we can. So we’re only asking you to chip in if you can

Any amount helps but nothing over $100. (We return that overage and pay a fee so…please.)

Your Small Donation contribution will support the vast majority of MPN patients who cannot. You’ll also get listed as a Sponsor in the Winter issue… unless you let us know you”d rather remain anonymous.

And, whether you’re able to contribute this time around or not, thank you for all your support.

***  After the Winter MPNforum issue covering ASH we are suspending regular publication to focus on the Forum’s new on-line patient/caregiver journal, MPN Science & Medicine plus special bulletins. All back issues of MPNforum will continue to be available at http://www.mpnforum.com.

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MPNforum, PO Box 17142, Asheville, NC 28816
Donations to MPNforum are not tax-deductible

The Fall issue of MPNforum is now available… and it’s historic.

http://www.mpnforum.com

The big news of course is FDA approval of gene therapy, an approach that completely rolled back a leukemia. That changes everything.   We explore that therapy and what it means for MPN treatment options now and in future.

Then there are the two big patient support projects rolled out by the Foundation and our option to sign up for a patient registry…. New help from MPN Advocacy and Education  to organize and run local MPN patient support groups…TSR news briefs… A reflection on end times… A brand-new update of the List of Hematologists…and a tongue-in-cheek look back at the first MPN Awareness  Day.

This is the next-to-last regular issue of MPNforum.  (The winter issue will cover all the news from the ASH Atlanta meeting with analyses from MPN specialists. ) And then we’re on to 2018 and new territory.

Read all about it in this issue, check out the main stories and drop in your Comments if you like.

                      It’s all at http://www.mpnforum.com

   Cheers

   The MPNforum team

Good morning….

MPNforum publishes its Fall issue on Thursday, September 14…and Ellen Jacquart is compiling updates for the List of Hematologists.  With over 60,000 visits to this page The List is one of the most frequently tapped international   resources for patients and caregivers. You can be part of The List with just a click of your mouse.

The deadline is Sunday morning, 10 AM ET. This is the last update of the List for some time SO… if you have a good hematologist please share the news with our friends in the MPN community. This is often a desperate and unmet need.  Thank you.

Everything you need is at: https://mpnforum.com/list-hem/

 

In order to build an inclusive blueprint for the future, The MPNforum Transition Team — Marina Peed, Michelle Woehrle, Ann Brazeau, Jeremy Smith  and David Denny —  is fielding a short poll.  Please take a minute to answer a few critical questions, thanks.

Zhenya Senyak, founder and leader of MPNforum recently announced that he is planning to transition leadership.  The transition team asks for feedback to help inform editorial direction, programming preferences of its MPN community, and invite people to join the team.  Please click and take this quick questionnaire and let your voice be heard! 

 

In order to build an inclusive blueprint for the future, The MPNforum Transition Team — Marina Peed, Michelle Woehrle, Ann Brazeau, Jeremy Smith  and David Denny —  is fielding a short poll.  Please take a minute to answer a few critical questions, thanks.

Zhenya Senyak, founder and leader of MPNforum recently announced that he is planning to transition leadership.  The transition team asks for feedback to help inform editorial direction, programming preferences of its MPN community, and invite people to join the team.  Please click and take this quick questionnaire and let your voice be heard! 
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