Why our network matters…
The first news of the Sanofi clinical trial suspension came from a patient, one of us.
Thanks to her, within minutes we were able to alert our international community through all the MPN FB pages, all patient support list managers, the Foundations, and publish a bulletin for MPNforum subscribers.
The imetelstat story that’s featured in this issue would have been distorted without MPN patients sharing their stories. We had all the corporate press releases, ASH abstract, the advance notices. Without the personal stories from patients on the imetelstat trial we would only have had a very partial story served up by those deeply invested in bringing the drug to market.
To track these and other developments we need to inform each other, share our experiences.. If there’s news in this issue of MPNforum important to others in your MPN network, please pass it along. Share your views and spread the news because all of us , together, are the network.
In this December issue of MPNforum there’s lots of other good stuff to share. Let’s make those connections that keep us the engaged, supportive community that we are.