International MPN News, Science & Opinion

My life of crime

LADY GAGA AND MY LIFE OF CRIME…

Mary Ann Farley is a singer-songwriter, a graphic artist with a store on Esty, a writer…and a woman suffering from ET and complications from her MPN, including a severe jaw bone infection and chronic pain. Dx’d in 1999 she developed Budd Chiari in 2002, suffered a life-threatening hemorrhage and today regularly takes Coumadin, Hydrea and painkillers…and continues to create art and music. (Ed.)

by Mary Ann Farley

Lady Gaga is everywhere. When I scan the channels there she is–in yet another interview, another video, another performance, another commercial. And I admit, I can’t get enough of it

But while I’m enjoying the ride, there’s a lingering malaise that’s sitting in the pit of my stomach like an undigested dessert, and I’m getting a tummyache.

It’s strange listening to Gaga, because her music has reignited a love of pop that I haven’t felt in a long time, and I feel something like a teenager again, when music was the sustenance of my existence. But here’s the rub: I’m not a teenager anymore–far from it, in fact–and all that went with my love of music in those days is long gone.

For example, when I listened to pop music as a young person, it stoked the dreams of me doing that myself one day, and so much of what I chose to do was put toward making those dreams a reality. As a kid, I dutifully took my music lessons, and as I got older, I joined bands, developed my songwriting and performing abilities, put my own band together, and hit the road. I recorded and released two CDs, was the critics’ darling, and came close to publishing and record label deals, which always ended up falling through.

Undeterred, I kept at it, but as the years began to pass, an eerie feeling soon emerged, which was this: If my dreams don’t come true, if I don’t end up a truly professional singer/songwriter (who no longer needs the day job), then what will happen to me? Who will I be without my dreams, or worse, without those dreams fulfilled?

For years, even decades, I didn’t allow those worries in, because like any good young person, I thought I would live forever. And I believed, perhaps naively, that provided my heart was in my work, as long as I didn’t sell out, then everything would turn out fine. There was nothing to be concerned about. I worked hard, my music was good, and I was committed. What could go wrong?

Well, what went wrong far exceeded anything that I could have imagined in my wildest dreams, as my health, which was never very good in the first place, took a dive in 2004 that brought me to a full stop. And just like that, it was all over.

While I’ve pursued other creative interests during this time, like writing and painting, and even dance for awhile, music will always be my first love as songwriting is what I do best. But when I became so ill and was racked with such unrelenting pain, there just wasn’t anything to write about anymore, and I knew I was done for a very very long time, maybe for good.

Whether it was creative exhaustion or the inability to put physical suffering into a song lyric (or a combination of both), I knew that my music days, for the most part, were behind me, but I was just too sick at the time to grieve over it, as most of the time, I was just trying to stay alive.

But in the last few months, I’ve noticed that my spirits have picked up, which has led me to pick up my guitar again, right around the same time Lady Gaga began promoting the release of her new disc. While her songs inspire me so, I painfully realize that I’m no longer the teenager who can fantasize that I’ll be like her one day. And frankly, I don’t know what to do with these feelings.

In short, I feel like crying all the time it seems, despite my rebounding spirits, because the days of dreaming about a music career are over. Let’s face it: No record company is looking to hire a 52-year-old pop star.

Some have suggested that I get back into the game as simply a songwriter, but even that takes money (to record demos), hence the realization of another grim reality: I’m flat broke. This illness has wiped me out so completely that I live in a Section 8 HUD apartment, am on Social Security disability, and am in chronic pain most of the time. This is NOT how I expected my life to turn out.

So when I see Lady Gaga in all her glory, talking about how she “stuck to it” to achieve her dreams, I think of the millions and millions of other aspiring performers who also gave it their all, sometimes for their entire lives, and have ended up with absolutely nothing, other than some wonderful songs that no one knows or cares about.

On a positive note, I’m so skilled as a songwriter that I no longer have to hone my craft for a lifetime in order to pen a tune. Instead of dreaming about it, I can pick up the guitar or sit at the piano and just do it, provided the inspiration is there, which is a BIG proviso, by the way. Without inspiration, I’m no better than a no-talent hack with nothing to say.

But the negative note seems to be ruling the day, it seems, for at least this day. I just heard a passing car blasting Gaga’s “The Edge of Glory,” which is an edge I sat on for a very long time. The scales just never tipped my way, and there’s a giant ache now where my dreams used to be.

Maybe it’s time to grieve for them, as I gave up everything to have them…marriage, children, and careers in other fields. I went for it 100 percent without a net, and now I’m splat on the ground after having fallen off the wire.

“I don’t regret it—not a bit. But I feel just so so sad.”

(That’s Mary Ann singing her song Life of Crime, accompanied by a montage of her photographs — except for the last famous shots.  ”I wrote this song over 10 years ago, when I had to drop my health insurance due to cost, during a time when I was very sick. When I’d get the doctor bills, I’d simply throw them in the trash, and soon began to feel like a criminal. Without doing it intentionally, I ended up writing a song that I’d later realize was about revolution, sweet-sounding as it may be.”

Take me back to the Contents

Take me back to More Stories.

© Mary Ann Farley and MPNforum.com, 2012. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Mary Ann Farley and MPNforum.com with appropriate and specific direction to the original content.

Comments on: "My life of crime" (5)

  1. What a wonderful talent you have, keep on keeping on; never give up on yourself. Thank you for sharing your story with us.

  2. Kathy Van Meter said:

    Wow! Just listened to a half dozen of your songs. Wish I had a fingerful of your talent. Thank you for sharing your gift with me. Peace…………

  3. Mary Ann, you’re truly inspirational

  4. Mary Ann – my daughter, Genny, also has Budd-Chiari — doctors don’t know if the SCT will cure it or not. Very strange, this rare disease accompanying an already rare disease (MPN). How did the two of you get so lucky to get two rare diseases? LoL. Wonderful article.

  5. Barbara Kurtz said:

    Thank you. I’m not the only one with stories of paths not taken or not taken successfully.
    But you have left behind a trail of songs and art.

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