Real help — when you most need it.
The MPN Community Support group is a group of patients volunteering to help fellow MPN patients find their way through the gnarly financial and social costs of treatment
Meeting the non-medical costs of treatment such as travel, childcare, short-term lodging, etc. as well as finding sources of nonprofit, private and government support for major medical expenses is a challenge all too familiar to MPN patients.
Clearly MPNforum and other patient support groups are more of an informational and referral resource than a source for significant aid. There are proposals to build a process and capital reserve to make direct grants in future so if you have any thoughts or want to volunteer, just jump on in. Leave a comment here or write: MPNfund@gmail.com. Jane Frantz is the chief financial officer.
Along with providing counseling, Diane Blackstock suggested the MPN Community Support Portal publish a permanent page of resources.
Here’s the MPN Community Support list. Hopefully, it will continue to grow and elicit comment and evaluation from patients who have used these resources.
http://www.giveforward.com/ (help it creating a fundraiser, no information on costs)
Rally.org | Easiest Online Fundraising. Raise Money by Sharing Your Story.
For coordination and communication of care
http://www.lifecreditcompany.com (A consumer lender with a cancer living benefit program)
There are times we or a loved one need access to investigational drugs. These are meds that are promising but not yet approved by the FDA. Commonly known as compassionate use of meds, the FDA provides a path to help acquire the drugs under its “Expanded access” program. Here are two helpful sites, one laying out the ground-rules, the other providing the necessary application information.
Help with co-pays and meds
For assistance with travel
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