Special Bulletin: Pacritinib return? (Details here.)
Melanoma: We’re all too familiar with the effects of cancer but until now we had little understanding of its beginnings. A view of the genetic fate of a cell, as it converts to a malignant state. (Full story here.)
Pacritinib: Another JAK2 inhibitor crashes at the end of a Phase III clinical trial. What does it mean for MPN patients? (TSR here.)
Pacritinib: Four patients…abandoned after the crash. Here’s what it feels like.(Short stories.)
The pacritinib affair: Screwed again. Only this time the guys in the black hats might be the Feds. “We need a T-shirt that says ‘MPN Lives Matter.’ Forget the T-shirt, we need a mob to stop traffic and shout it out at the entrance to the FDA, at the doors of Big Pharma “ (Read it Here.)
This is my wife, Karen:
On Valentine’s Day she was diagnosed with leiomyosarcoma. Seven months later, she died. Compassionate doctors enrolled her in an NIH clinical trial. It helped kill her.
(What we don’t know about Clinical Trials can kill us. Story here. )
In the current MPN Quarterly Journal issue: “Looking forward: Novel therapeutic approaches in chronic and advanced phases of myelofibrosis,” by John Mascarenhas. The complete Hematology 2015 paper (Here.)
Next week, February 25th, Dr. Robyn Scherber, our favorite MPN fatigue guru, will be on a slate of MPN specialists appearing at the MPN Advocacy and Education meeting in Washington,DC. For details of that meeting and the March meeting in San Mateo, go here.
Just Updated: The New List of Patient-Recommended Hematologists –
The MPN Genetics Network .. Report on CREATE
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