MPNforum Magazine

Dear MPN friends,

We are happy to introduce a new study on Myeloproliferative Neoplasm Related Fatigue (MRF). As you may be aware, fatigue represents one of the most severe and prevalent symptoms experienced by those with Myeloproliferative Neoplasms (MPNs). However, previous studies have not been able to fully assess the complex nature of this fatigue or what can be done to alleviate it. Thus, we have embarked on a project, called the MPN Fatigue Project, with the goal of better understanding MRF.

In October of 2012, the MPN Forum initiated the first phase of the project. With the help of many of you, we were able to gain a better understanding of the strategies you use to combat fatigue, including many of the common medical, diet, exercise, relaxation, and nutritional strategies. We are now pleased to announce the initiation of the second phase of our project.

This expanded phase is an online survey which assesses fatigue in greater depth along with evaluating other conditions which can contribute to fatigue such as low blood counts, thyroid problems, sleep disturbances, heart or lung diseases, and mood changes. The results of this study will set the background for phase three of this project, which is an interventional study designed to integratively tackle fatigue by pairing your fatigue-reducing strategies with standard medical MPN treatments. Overall, we would like to sincerely thank each MPN patient for your dedication to helping us better understand MRF. We hope that you will once again partner with the MPN forum and our research team to complete this online survey.

Sincerely,