International MPN News, Science & Opinion

Go take a hike!

Don’t just stand there. Take a hike!

When you get tired of hearing “There’s no cure for myelofibrosis” you can get up and do something about it, something meaningful. Julie Libon, an MF patient, rallied her family and friends last year and kicked off HikeMF.

Hike Moose Hill

That little walk in the woods netted the MPN Research Foundation over $25,000. And they’re doing it again this year.

Supporting MPNRF  matters. In the past decade, every major leap forward in unraveling the causes and cures for MF have been boosted by the Foundation’s grants… over $11 million in grants so far.

If you can’t head up to Sharon, Massachusetts on May 21 you will miss Spring up in the Moose Hill Wildlife Sanctuary…bootsbut you don’t have to miss the party. Dig deep and back  Julie and the Hikers with a donation. Here’s the story, a video and some virtual hiking boots for you.

You can set up your own HikeMF event and fundraising page. Just hike on over to www.HikeMF.org for the details.  It’s a great way to make friends and get more people involved in wiping out MF.

Go for it. Do something about curing MF.

And here’s Julie to tell you about it…

“HikeMF is gearing up for another successful year!

Join us on May 21, 2016 at 10:00AM for the 2nd annual HikeMF! Our 2 mile scenic hike will take place at Moose Hill Wildlife Sanctuary in Sharon, MA. This trail is good for all ages, so lace up your boots, bring your friends and family

Julie and her sister, Lori, so-founders of HikeMF

Julie and her sister, Lori, so-founders of HikeMF

and join the fun for a great cause! We will have refreshments, raffles and a silent auction after the hike! Register today….Space is limited!

If you can’t join our hike, please consider supporting a hiker or setting up your own fundraising page at HikeMF.org 

BECOME INVOLVED….TOGETHER WE CAN FIND A CURE!

Our hike supports the important work of the MPN Research Foundation (MPNRF). The MPNRF has been involved in every significant MPN breakthrough.

In 2014, HikeMF founder, Julie Rittenburg Libon, was diagnosed with Myelofibrosis, Julie and her family quickly learned that there are limited research funds for Myelofibrosis. They chose to become proactive and HikeMF was formed.

HikeMF raises funds for desperately needed research. For many patients time is of the essence. It is imperative that we find a cure. Check out HikeMF.org to donate, register to hike or both. All donations are tax-deductible and go directly to research.

JOIN US….YOU WILL MAKE A DIFFERENCE!

Last year, our inaugural hike raised $25,500! 135 people came out in support of those living with Myelofibrosis and many more donated. It was an amazing day!

HikeMF 2016 is off to a great start! Due to the strong marketing, social media and website skills of Dan Libon, Alyssa Libon and Megan and Mike Boshuyzen, many people have already donated and signed up to hike. With your support, we are confident that we will reach our goal of 150 hikers and surpass our fundraising goal of $30,000.

This year we are excited that you can set up and design your own fundraising page. Just visit HikeMF.org and all the information you need is there. Once your page is set up, send it off to family and friends. We can all be active in finding a cure!

HikeMF is thrilled that others with Myelofibrosis (MF) are making the trek to Massachusetts to join us this year. Amy Brown, who has MF, will be our main speaker. She is a shining example of someone who is living life to it’s fullest, regardless of her disease. She has an interesting story to tell. I know our hikers will be in awe of her MF journey.

As you know, there are many inspirational people living with Myelofibrosis. Some are trailblazers who have entered a drug trial with the hope that it will be the cure or treatment desperately needed, some are out of hope and saying their goodbyes and some are in the watch and wait stage. All are hoping for a cure!

In memory and in honor of all those affected by Myelofibrosis, we at HikeMF will continue hiking until a cure is found. 

WITH RESEARCH THERE IS HOPE!

Can we count on your support?

DON’T DELAY….DONATE TODAY!

Thank you for your support in helping to advance blood cancer research.

With much appreciation and many thanks!”

HikeMF is on Facebook.   facebook.com/hikemf. For more information:  HikeMF.org

 

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