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Late Summer 2013, Newsletter: 8/19/13
“When do you cross the line from essential profits to profiteering?”
— Dr.Brian Druker.
We’re not the only ones worried about high drug prices. This Spring, a group of 100+ hematologists from 15 nations published their concerns. Now we’re launching a PETITION during Blood Cancer Awareness Month for MPN patients, caregivers, and healthcare providers to help drive the price of these life saving drugs down to cost-effective levels. (Story and COMMENTS, here.)
An Open Letter to Dr. Paul Friedman, CEO, Incyte
Incyte Cares…but about what?
Is Jakafi over-priced? The true impact of a blockbuster MPN drug.
The story is right HERE.
Everything you wanted to know about MPNs in one place.
The Six MPNclinics combined, with Index. Nine top MPN docs answer 141 questions.
…right HERE.
(TSR), The Senyak Report
Simtuzumab – the mixed bag of clinical trial…
The best of patient support meetings…
Sanjay Gupta likes pot… (Full “Weed” Documentary)
Hitch a medical ride with Southwest…
Sunshine Law takes effect for docs…
Find a Cure, pass along $100…
In the Q this summer…
How I diagnose MPNs? …Silver, Mesa, Hasselbalch, Verstovsek, Gotlib, Levine
Dameshek on Diagnosis by J.J. Michiels…
Implications of MF Misdiagnosis by Srdan Verstovsek…
The List — 100+ Patient-Recommended Hematologists
Tell your story, express yourself, share your experience in your MPN magazine. You can add your comments to MPNforum articles, list your Blog, or write an article. (We’ll even help you get started.)…Letter to the Editor
For information
Contact: ourMPNforum@gmail.com
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Comments on: "MPNforum – Late Summer 2013" (2)
Anybody having trouble with weight gain on Jakafi? I’ve been on 15 mg for several weeks and am having trouble with weight gain or water retention…not sure which. And, yes, I am exercising.
Thanks Zhen, it worked. Now I also know a new “trick”