Science & Medicine

MPNforum – Late Summer 2013


 Late Summer 2013, Newsletter: 8/19/13

“When do you cross the line from essential profits to profiteering?”

—  Dr.Brian Druker.

We’re not the only ones worried about high drug prices. This Spring, a group of 100+ hematologists from 15 nations published their concerns. Now we’re launching a PETITION during Blood Cancer Awareness Month for MPN patients, caregivers, and healthcare providers to help drive the price of these life saving drugs down to cost-effective levels. (Story and COMMENTS, here.)  

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An Open Letter to Dr. Paul Friedman, CEO, Incyte

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Incyte Cares…but about what?

            Is Jakafi over-priced? The true impact of a blockbuster MPN drug.

finger pointing smallThe story is right HERE.

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Everything you wanted to know about MPNs in one place.  

             The Six MPNclinics combined, with Index. Nine top MPN docs answer 141 questions.

finger pointing small …right HERE

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(TSR), The Senyak Report

 Simtuzumab – the mixed bag of clinical trial…

 The best of patient support meetings…

 Sanjay Gupta likes pot… (Full “Weed” Documentary)

 Hitch a medical ride with Southwest…

 Sunshine Law takes effect for docs…

 Find a Cure, pass along $100…

finger pointing smallThe TSR Newsletter is HERE

header lineIn the Q this summer…

How I diagnose MPNs?Silver, Mesa, Hasselbalch, Verstovsek, Gotlib, Levine

Dameshek on Diagnosis by J.J. Michiels

Implications of MF Misdiagnosis by Srdan Verstovsek

PV, what’s the right number?


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The List — 100+ Patient-Recommended Hematologists

The Catalog of Articles. ..

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Tell your story, express yourself, share your experience in your MPN magazine. You can add your comments to MPNforum articles, list your Blog, or write an article. (We’ll even help you get started.)…Letter to the Editor

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© MPNforum, LLC and, 2013. MPNforum is licensed under a Creative Commons Attribution-NonCommercial-NoDerivs 3.0 Unported License. Unauthorized use and/or duplication of this material without express and written permission is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to with appropriate and specific direction to the original content.

Comments on: "MPNforum – Late Summer 2013" (2)

  1. Fran Baker said:

    Anybody having trouble with weight gain on Jakafi? I’ve been on 15 mg for several weeks and am having trouble with weight gain or water retention…not sure which. And, yes, I am exercising.

  2. RuthAnne Blair said:

    Thanks Zhen, it worked. Now I also know a new “trick”

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