The MAGIC of good people working together.
We owe a debt of gratitude to 18 people, the MS3T all volunteer medical taskforce.
Sometimes, well below the radar, there are good people working for the benefit of MPN patients without reward, publicity, or even acknowledgement.
For nearly two years, work has been progressing on MAGIC, a simple graphic calculator to assess the risk status of myelofibrosis patients. This is a critically needed tool in an environment where most MPN patients are not treated by specialists and where the outcome of certain procedures depends on timing.
The MS3T Taskforce– contributing to and reviewing the original stem cell transplant timing tool–includes four hematologists (DoctorsClaire Harrison, Ruben Mesa, Richard Silver, Srdan Verstovsek) four transplant specialists (Doctors Koen Van Besien, Nicolaus Kroeger, Jeanne Palmer,Uday Popat) a hematopathologist (Dr. Attilio Orazi), the Scientific Director of CIBMT( Dr. Wael Saber), three MPN patients, Chris Harper, Beatrice Larroque, Marty Prager; and four patient advocates, Ann Brazeau, Ann Haehn, Barbara Van Husen, Michelle Woerhle.
MAGIC – the Myelofibrosis Assessment Graphic Internet Calculator— will soon find a permanent home with the original project sponsor, MPN Research Foundation. But you can preview MAGIC right now at https://www.mpn-magic.com/
Take it for a test drive and let your MPN friends know there’s now a quick. validated means to help us work with our docs in making therapeutic decisions.
Thank you…and thank you, MS3T,
Zhenya Senyak, Project Director
Comments on: "MAGIC" (3)
Many thanks for highlighting this new and valuable resource Zhen, I’ll definitely be raising this at my next review
Manuela, thank you. We need to accelerate usage of MAGIC by MPN patients, not only those of us with myhelofibrosis but all of us, support our friends who need these indications of risk, provide the link to our doctors — most of whom are not hematologists experienced with MPN patients. Adoption of MAGIC and siting the basic tool on the MPN Research Foundation website will help, but our friends in Europe, Asia, South American and Africa need access to this tool.
Thank you all who created the risk assessment form. It will be a valuable resource of patients.