It’s Hard to Figure Out.
Could be the way I went about it. MPNforum has a program for 2019 that needs funding and volunteers. Several very strong volunteers came forward and you’ll meet them in February. But not donations, at least not enough to get our program launched:
The top items on our list are: Mutation testing for all MPN patients, monitoring of every MPN clinical trials, and support for gene therapy and interferon. Beyond publishing, this year’s program calls for meeting with opinion leaders and producing the occasional piece of literature or press release.
So it’s hard to say if (1) MPNforum members don’t want the program, (2) never got around to reading about it in our annual report (https://mpnforum.com/annual-report/), (3) don’t agree with what we’ve been publishing, or (4) just didn’t realize this was a call for donations.
We have the volunteer staff and medical specialists on board. All we need is a enough cash to get the job done.
MPNforum is a community project, patient driven and all volunteer. Your donations fund the publications and the programs. We have no employees. We receive no ad revenues. No grants. No circulation fees. No revenue from sale of user data. !00% of donations goes into operations and programs. All we have is each other. Unless we don’t.
You can donate and volunteer on our Annual Report page: https://mpnforum.com/annual-report/
Or just click on this link for monthly and one time donations. And thank you.
MPNforum, PO Box 17142, Asheville, NC 28816
Donations to MPNforum are not tax-deductible