The Internet can make freeloaders of us all.
MPN survival is not a spectator sport. On this journey, you can’t expect to sit back, ask a question or two and then just lurk in the shadows observing. It’s also not a free lunch. Somebody pays.
Blame it on the Internet. Gmail, Facebook, Google…all free. Except they make hundreds of millions of dollars by tracking our activities and selling the data to advertisers. That free ride costs us our privacy…plus the hidden price increase we pay for stuff we buy since those advertising costs have to get covered.
And the Drug companies. They donate funds, support events, offer free help on-line. It’s all a PR/marketing trick. Did you know our friends at Incyte raked in 1.3 BILLION dollars on Jakafi in 2017 alone. $1,300,000,000
And then there’s that other world. Our world. MPNforum. We’re the MPN community and we’re in this together. No advertising. No grants. No subscription fees. Just us
But some of us are confused. This is the Internet, right, What’s with asking for money?
Here’s why. For the privilege of covering the ASH San Diego conference, an exhausting affair for even the most hardy of us, we need $2487. To cover direct out of pocket expenses. No charge for interviews, writing, production and printing the magazine. 12,000 of us read each issue. If we each coughed up a 25 cents — 15 minutes on the local parking meter — we would have the trip covered with change to spare.
Not everybody can contribute funds. That’s why we set up the Small Donation Program. Anything from $5 on up to $100. We put a lid on maximum financial contributions because none of us should have an outsized influence on content based on big bucks..
And that’s the final point. There’s only one non-commercial, on-line, all volunteer medium serving the MPN community. It’s managed by professional editorial and science writers and serves up the creative contributions of over 200 patients, caregivers, physicians and scientists. You can see our track record in the Graphic Catalog of Articles.. More breaking news, more investigative journalism, more pure science and medicine reporting than the combined MPN commercial media supported by Big Pharma advertising. When MPNforum reports a story it has been fact checked and validated at the source.
So when we ask for carfare to cover a meeting, we’re not doing it lightly. We doing it for you. And me. And all of us. There are real world costs to cover, real results to report. Thank you!
The Small Donation Program — Any amount from $5 but nothing over $100.