WHERE DO YOU GET YOUR MPN CARE?
Doctors drive our treatment options. We’ve got a rare disease. MPN specialists are even more rare. So who do we see to check our blood counts, monitor our condition, plan our therapy?
Please take this 2 minute survey. It’s part of the work being done by the MS3T Taskforce exploring timing of therapeutic options, a project sponsored by the MPN Research Foundation. Full results published July 19. https://goo.gl/forms/UzuS2n2cWYk5KEEP2
And thank you,
Zhen
MPNforum Magazine 
Comments on: "Where do you get your MPN care?" (2)
only the place where diagnosed is asked , i since diagnose have moved to different specialyst ,
I think it is valuable to regularly check the oil within our mpn family.
My care is provided by 2 hematologists. A local community hematologist and a true MPN specialist/research/clinician/educator. I alternate visits every 3 months in a leapfrog fashion between the two. My specialist prescribes the medication and directs my care. The local doc is the one who monitors my bloodwork monthly and will often order a phlebotomy if my specialist suggests it.
Communication between them is inconsistent so I take it upon myself to ensure the local guy only does what my specialist prescribes.