International MPN News, Science & Opinion

A common road.

forumsphere

With a few different twists and turns, we travel  down a common road.

We have a rare blood disorder in common.  And, in common,  we need to understand our treatment options, to connect with one another’s experiences. Across our support groups, Facebook pages, MPNforum, MPN-NET, MPD Chat, PV Reporter, MPD Support, MPN Voice we care for each other.

From the beginning, MPNforum was always more of a community than a newspaper. It’s a way to link us together, to show each other what we look like, a way include us all in the big international medical meetings we could never get to on our own. MPNforum takes us inside the labs producing scientific findings,  inside the MPN Research Foundation grant review process, inside our personal  trials and procedures, sharing our achievements…and our sorrows.

 A huge MPNforum community of hematologists, scientists, patients and caregivers contributes stories and photos. Some contribute time to publish, to maintain lists, to support research projects. Some also contribute small donations to keep the lights on and pay operating costs.

MPNforum is a collective, voluntary enterprise. No one gets paid to do the MPNforum work.

This is the Small Donation Program. We ask you for supporting gifts from $5 to a maximum of $100. It’s entirely up to you. You will receive no tax benefit, no public listing of your name. Just a thank you note…and the knowledge that you’ve done your share.

On this road, there are drivers. And there are the driven.  For those who must be driven, please be a driver. Take the wheel. Donate. And thank you!

              

MPNforum, PO Box 17142, Asheville, NC 28816

Comments on: "A common road." (2)

  1. Jenne Yamsek said:

    I want to thank you for all the information you have sent me. My husband, who had ET is no longer living and I no longer communicate with the MPN fmily. Would you please unsubscribe me and I wish all of you the best, Sincerely, Jeanne Yamsek ,wife of Pete Yamesk, deceased

    • I am sorry for your loss, Jenne. Under the WordPress system, we can’t unsubscribe you, I checked to see if tere was a update on that limitation and found this. I hope it works for you. If not, please let me know and I’ll contact WordPress for help:

      Your followers control their own subscriptions – you don’t and can’t do this for them. Here are brief instructions for unsubscribing from a blog if the person has a WordPress.com username account:

      1. click the “unsubscribe” link on the emails of the posts received at the very bottom of the emails.
      2. go here > http://wordpress.com/#!/read/edit/ locate and click the “x” next to any blog there to unfollow it and no longer receive posts in the Reader or by email.
      3. go to the blog in question and click the unfollow/follow link on your Admin bar.

      If the persons does not have a WordPress.com username account then 1. applies.
      1. click the “unsubscribe” link on the emails of the posts received at the very bottom of the emails.

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