Hi, there and best wishes to you for a healthy, creative and peaceful 2013,
On January 15th, in our next issue, we’re publishing a report on the Fatigue Project. Partly this is a report on a few clinical studies – for example did you know that 61% of patients consider fatigue a more serious Cancer-related Fatigue problem than pain? And it’s an overview of first findings, along with new stories, Professor Ruben Mesa’s Top Ten Tips, and the surprising introduction of a possible cause of MPN fatigue that is responsive to treatment.
The article is long and I wanted to get it to you in advance of publication to give you a chance to read it, think about it, and add your comments to the discourse.
One core concept is the need for a new approach to MPN treatment that includes assessment and treatment by a team of specialists… a concept endorsed by the NCI and non-profit National Comprehensive Cancer Network.
You can get to the article, entitled “The Missing Patient,” at https://mpnforum.com/the-missing-patient/ It is password protected.
The password is dysthymia
Please pass along any comments or errors you might find – either in the regular comments box at the end of the article or to me at firstname.lastname@example.org. You’re welcome to pass along the link and password to your friends on Facebook pages, support groups, or social media. This needs to be a wide open discussion if we hope to impact the quality of MPN care.
All the best,