International MPN News, Science & Opinion

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Hi, there and best wishes to you for a healthy, creative and peaceful 2013,

On January 15th, in our next issue, we’re publishing a report on the Fatigue Project.  Partly this is a report on a few clinical studies – for example did you know that 61% of  patients consider fatigue a more serious Cancer-related Fatigue problem than pain?    And it’s an overview of first findings, along with new stories,Ruben Mesa Top Ten Professor Ruben Mesa’s Top Ten Tips, and the surprising introduction of a possible cause of MPN fatigue that is responsive to treatment.

The article is long and I wanted to get it to you in advance of publication to give you a chance to read it, think about it, and add your comments to the discourse.

One core concept is the need for a new approach to MPN treatment that includes assessment and treatment by a team of specialists… a concept endorsed by the NCI and non-profit National Comprehensive Cancer Network.

You can get to the article, entitled “The Missing Patient,” at https://mpnforum.com/the-missing-patient/   It is password protected. 

The password is   dysthymia

 Please pass along any comments or errors you might find – either in the regular comments box at the end of the article or to me at zhenyasenyak@gmail.com.  You’re welcome to pass along the link and password to your friends on Facebook pages, support groups, or social media. This needs to be a wide open discussion if we hope to impact the quality of MPN care.

All the best,

Zhen

Comments on: "The Missing Patient (Advance)" (2)

  1. Susan Kennedy said:

    Help! I am not computer with it and I cannot view the Missing Patient article.

    Thank you very much, Susan Kennedy (PV) Ky 859-269-3249

    • Hi Susan…Sorry for the complication.
      This is an advance publication of the article that will be available without the password requirement on January 15. We released it early to subscribers, password-protected, because it had not yet been reviewed or proofread. The subject — Fatigue and its lack of treatment by healthcare providers — is important to many of us and relates to the on-going Fatigue Project.
      You can reach the article at https://mpnforum.com/the-missing-patient/
      When you get there type dysthymia in the password box (no capital letters) and it should open up.
      Please let me know if you have any difficulty.

      Thanks,

      Zhen

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