International MPN News, Science & Opinion

Sam’s Art

Sam Morreale, Artist.

“ I always believed in being constantly busy, and work- work – working … but this disease has slowed me way down and makes me wish I’d slowed down sooner in my life. I’m enjoying my days more and not minding too much that everything has come to a screaming halt. I want my time to count and when it can’t – I want to check out gracefully and leave my space to the next guy. I’m anxious to see what the next adventure is and so hope I’ve lived my life well enough not to come back as a damned cat! “

Our Life

by Cyndy Morreale

I love waking up in the morning to find my husband Sam, paintbrush in hand, working on his latest art creation. His art is big, bold, and very colorful … much like Sam has always lived life.

JAZZ -- Poster for Art Exhibit

Naptime

In my 30 years of being with him we have had many a crazy adventure, beginning with owning a clothing optional hot-spring, having a dinner cruise boat on the Sarasota Bay and building a botanical garden in the Caribbean island of Saba. There were trips to Bolivia, Central America, France and Italy; and cross-country drives that spawned new ideas with every city we saw and every restaurant we ate at. We couldn’t take a vacation without Sam coming home to implement some cool idea we’d discovered on our journey.

In 2007 Sam and I sold our restaurant and piano bar and prepared to get back to our travelling ways again. A diagnosis of myelofibrosis and later myelodysplastic syndrome curtailed any dreams and put a stop to those plans. Preparation to die was the only thing in the cards it seemed, until Dr Mark Brunvand of Colorado Blood and Cancer Institute suggested that my husband try a relatively new chemotherapy with Vidaza.

Anastazi Sunset

There was never a consideration of getting a bone marrow transplant. Sam was already into his 60’s and made it very clear he had no intention of going through such a risky procedure for his age. “I decided that if it’s terminal either way, why bother?’ Sam said. “I’m not afraid to die, and I don’t want to spend my final days in some hospital. I’d just as soon die at home and skip the aggravation. Worst-case scenario, your energy is low and you’re tired most of the time.” Sam felt he would try to live with that.’

Dr. B. did suggest that we relocate to the lower altitude ofDenver. Our beautiful home in the mountains of Colorado was at 8200’ – too high for Sam’s low hemoglobin count. It was apparent that 12 years of us living at Happy Thought Ranch with its 7 ponds and a stream running through the property – was to be left behind. Fortunately for us, Happy Thought is only a half hour from Denver and visits are still possible with the use of oxygen.

One Way

City life, bright lights and gallery hopping did its magic on my husband and after only a month and a half – he went to the local art store and bought his first canvas in over 15 years. For the longest time our whole family had begged Sam to paint again yet he felt he couldn’t hold his arms up enough to do the job. One day, he finally figured out a way to do it – on a drafting table. Now he now he is almost addicted to working on his paintings, rising in the morning and painting prolifically between bouts of fatigue. He’s had two art shows and is entering three calls for artists this month.

Le Cirque

Sam has been receiving the Vidaza chemo treatments every 6 weeks to help with the myelodysplastic syndrome – and it seems to have kept the MF at bay as well, for the time being. He still gets transfusions of red blood cells every 2 or 3 weeks to keep his blood oxygen levels acceptable. Occasionally right after chemo treatment his platelets will plunge lower than 5 and then he receives a large dose of washed platelets. Since being on Vidaza, Sam has gained back all of his weight, lost that frail look and eats and sleeps just fine. People are constantly saying “but you look so good!”

We have adapted a much more calm routine in our lives, having a few friends in for dinner and frequent family and grandchildren visits. “It wasn’t how we thought it would be but it’s a darned great life!!! says Sam.

Celebration

Purchase inquiries should be addressed to: “Cyndy Morreale” <iloveagrand@hotmail.com>

Chasing Cezanne

ENUF

© Sam and Cyndy Morreale and MPNforum.com, 2011. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to San and Cyndy Morreale and MPNforum.com with appropriate and specific direction to the original content.

Comments on: "Sam’s Art" (6)

  1. stephanie onel said:

    thank you for this story…returning to our creative self is like finding our way home.

  2. Melissa Levin said:

    Thank you for sharing your story. I am also an artist and have had to tighten up my life so that I can handle the fatigue. I was diagnosed with PV and ET in 2001, I had a Bud Chiari in 2003 and was given 3 days to live if things didn’t change. What changed was my attitude. I decided there was no way I was going to die at Toronto General Hospital looking out the window at the snow. Each new day was a challenge and got myself home. While recovering for a year I was doing a lot of jig saw puzzling. It was the discovery of switching the pieces between like puzzles that got me back to making art again. I had a show in 2004 and sold out the all the work. One of my goals when in the hospital was to purge the stuff I had collected. I opened a small vintage store as a one month pop up. it lasted 15 months and was a huge success. But MF has taken my energy and had to close the store. My goal in 2012 is to get back in the studio and continue my work. I have a show lined up for November! Though my circle has gotten smaller my life feels bigger then ever!
    Attitude and Approach are 90% of that. I’ve learned to listen to my body and go with the fatigue. I am on Revlimed and Hydroxurea and it seems to be working well.
    Happy New Year! Melissa
    “Every day is a gift. That is why it is called the present.”

  3. Thank you for sharing a part of your life with us – how very inspirational you two are. The art work is wonderful, what talent.

  4. Marley Allin said:

    Wonderful paintings, cheered me up. Thank you Sam
    Marley PV. ET 2004

  5. Pamela J Fatone said:

    My Husband is also Sam and in 2005 he was diagnosed with MF. He too is artistic. We are heading down to the MPN symposium next week in Florida, hopefuly to learn, there is it seems lack of information, or lack of direction to the information. I was glad to find this site. I enjoyed reading your story and i wish you best days with your Sam. I love his colorful style.

  6. Joan Gatturna said:

    What a wonderful attitude! It’s a lesson in adapting to life’s twists and turns. Illness like MF can make your world smaller, but if you look in the right places, there are most likely some wonderful things to experience in that smaller sphere. Thanks for the uplift, as we are adapting to that situation in this household. Rock on!

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